Help Make My Voice Heard

Published October 15, 2018 by lynn k scott

I created a petition to alert the state of California to how cancer patients are being treated by Sutter Health.  If you could find it in your heart to sign and then reblog, share on Facebook, Twitter, or any other platform, I’d appreciate it.

It’s time we told insurance companies they can’t let doctors control who they do/don’t treat.  We are all people.  No one facing a life-threatening illness should have the stress of no treatment options because someone deemed a patient not worthy.

You can find the petition HERE.

Thank you for your support in this latest cancer development.

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Kicked out of Sutter Oncology/Hematology

Published October 12, 2018 by lynn k scott

I just learned today, after following up, again, on an oncology referral, that I have been dismissed from Sutter Health Oncology/Hematology. I never received the original dismissal from my first oncologist. Apparently, after I saw my PCP for another referral, because my existing oncologist was bought out by John Muir (which they failed to advise), I was blackballed by Sutter.  I only learned of this today, over the phone that I am not allowed to see any doctor in oncology/hematolgy.

Sutter is refusing to treat a stage 3 colon cancer patient because I couldn’t understand my Russian-born oncologist. They are collecting premiums and denying care.  I went through the steps of seeing a PCP for a referral for an established disease that Sutter knew of for the previous 10-months.  Sutter told me I had to do this to see another oncologist and they knew full well I couldn’t be seen by anyone in Sutter who could treat my cancer.

My only option is to my PCP or go to urgent care; neither of which can treat my disease.  I can go to the Emergency Room but they can’t refer me to an oncologist, whom I’d have to see for follow-up care.  I am only allowed to see someone out of network and they have no one for me to see.

I am allowed to choose my doctor. It is not out of the norm for a female patient to want a female doctor. Based on the medical terminology, it is not out of the norm to insist on a doctor whom I can understand, without the aid of her staff.

Have I been challenging? Yes! Have I been rude and sworn? Yes. Why? Because I, ME, am in charge of my care. I, ALONE, determine my treatment!!!!

Doctors take an oath to treat patients. Yet, they pick and choose who they will care for. The ones who blindly go along with their godlike mentality are their preferred patients. How dare the patient question them? I am the one living and battling cancer – NOT THEM!

Please share this. Let the world know how cancer patients in Northern California are being treated.

 

REBLOG: I’m All Signed Out — That Anxious Mom

Published October 12, 2018 by lynn k scott

I had to share this blog from “That Anxious Mom”.  I laughed out loud reading this one and prompted me to write up a short blog.  Please, never stop sharing your daily lives.  ~Lynn

 

Kids are so weird. Baby Girl often changes her name depending on what she’s interested in and wants us to call her that. She has been Charlotte, Wilbur, Marshall, Lucy, Elastigirl…it does not stop. Sometimes she’ll keep the name for days or weeks. (Like the time she wanted to be called “Miguel” and insisted on […]

via I’m All Signed Out — That Anxious Mom

Thank You For Sharing Your Kids

Published October 12, 2018 by lynn k scott

I just want to thank you all for sharing your kids and their antics with me (ok, with everyone who reads your blogs).

kids

As a mom of five, I can empathize with a lot of what you are going through.  I can also be very grateful that most of your stories are now behind me.  Granted, I’m heading into my last set of teen years, but the little one stories are behind me.

Some days, I’m feeling completely out of sorts and reading how your children are driving you and/or their siblings to distraction with their every day perspective is wonderful.  It’s just the pick-me-up I need.

laughter

So again, thank you and please keep sharing.  One day, you’ll look back on all your posts and show them to your kids’ future boyfriends/girlfriends or just take a stroll down memory lane.  You’ll be glad you documented all that they said and did.

Still waiting…

Published October 12, 2018 by lynn k scott

Today makes two weeks since the hoop-jumping commenced.  I did as I was required; saw my PCP to get an oncology referral (even though my insurance knows I have cancer).

My PCP claims they called me to say the referral was approved and to call the oncologist.  That was pure fabrication.  I only found out, because I called a week after the appointment since I hadn’t heard anything.

This past Monday, I called the oncologist’s office and was told they hadn’t even reviewed the file yet.  They couldn’t tell me how long it would take for the doctor to review the file to see if she could even treat me.  She only reviewed files in between seeing patients.

Now my PCP was told I was having anemia symptoms, yet she didn’t flag the file with any urgency.  She put it through as a basic referral.  This is the problem with using a PCP for conditions they don’t treat.  If they are to facilitate care, then listening to the patient would be a good place to start.  If the patient deems the situation as an issue, then the doctor has an obligation to process that information accordingly; especially if they are symptomatic.

My energy levels are falling.  Day to day life is becoming more and more challenging (again).  Yet, I sit and wait because the medical profession has no sense of urgency.  I’ve upped my caffeine intake and back to taking naps the second I get home from work.

When will doctors get a clue they are messing with people’s health by their lack of concern.  They aren’t battling a life-threatening disease.  They aren’t waiting in limbo to see if the cancer has spread or new cancer has emerged.  They have all the time in the world (at this point).

Yet, I and so many like me, are dependent on a broken system that doesn’t value life.  This is our reality.  We struggle, we worry, we pray and we just wait.

Vegan Matar Paneer

Published October 9, 2018 by lynn k scott

I love Indian food.  However, it’s not always gluten-free (cross contamination issues at a restaurant).  I also am doing my best to stick to my vegan diet, especially at home.  That being said, I have noticed a lot of vegan dishes use chickpeas because of the high protein content.

I have several Indian spice shops close to home so I enjoy shopping there for my spices and I also buy organic chickpeas there.  I simply soak them and cook them to add to a variety of dishes.

Last night, as I was labeling and refilling my spice containers, I thought of matar paneer (peas and cheese).  I had considered using tofu as the paneer substitution, but not a huge tofu fan and I didn’t have any on hand.  Then it hit me…CHICKPEAS!

I quickly assembled my ingredients….oil (just a bit), onions, garlic, spices, tomatoes, water, peas and chickpeas.  There might be an ingredient or two missing, but those are primary ingredients.

I quickly whipped of my vegan version of one of my favorite Indian dishes.  As the rest of the family was already having rice with their dinner, I borrowed a scoop to serve with my modified, now vegan dish.

While I do miss the paneer (cheese), the chickpeas work really well as a substitution.  I am looking forward to trying to make more Indian dishes with chickpeas.

matar paneer

Home Educating and Working Full-Time

Published October 9, 2018 by lynn k scott

I am employed, full-time, outside the home.  I am also a home educator for my daughter. This post is to show working parents you can work (if need be) but still provide a quality education to your child(ren).

Home education, in general, is time consuming and hard work.  In addition to reviewing curriculum, reviewing coursework, grades (if you’re required by your state) and teaching your child.  Throw a full-time job into the mix and it’s downright tiring.

learning

Yet, I wouldn’t change our educational journey for the world.  It’s time that I get to spend with my daughter.  Granted, she’d rather be watching BTS or whatever music group has caught her attention, but it’s precious to me.

So, how do we make it work?  When she was younger, I would send work with her that could be done independently, while at a sitter’s house.  Now that she’s older, we go over “homework” that she will do while I’m at work.  She also has daily chores and she has to clean whatever mess she makes in the kitchen.

In addition to the basics such as history, English, math and science, Bible, she practices her guitar.  Some nights we dance to YouTube videos, she practices skateboarding or uses the Xbox for physical education.  We read books aloud and discuss them.  Once I, or her father arrives home, she is allowed to get the laptop out and log in to do her Spanish lessons.

A typical Wednesday goes like this:

  • I work
  • She calls me to check in (and clarifies any homework problems)
  • She practices guitar (daily)
  • I leave work early to pick her up for guitar lessons
  • Thirty minutes later we head home to prepare dinner
  • Depending on what dinner is, we may have time to read a chapter or two from our current literature selection
  • She helps prepare dinner and/or sets the table
  • We eat as a family and then we clean up the kitchen
  • Education resumes – time to review the day
  • I look at each assignment.  If there were problems (say with math) they are addressed
  • We cover new assignments
  • Discuss her day

While this may seem like a lot, it’s not too bad.  No two days are the same.  We adjust as the schedule as life plays out.  When I had to have surgery, she brought her books to the hospital and yup, her education continued.  Flexibility is something you have when home educating.

While cooking dinner we discuss the food we are preparing.  Since my daughter has a huge cancer risk (my side of the family is riddled with various forms), knowing what foods offer and how a our bodies process varies nutrients is always forefront in our home.  I am on a special diet, so she learns what different herbs, spices and vegetables have to offer.

Above all, education is more than books.   I will not say it’s easy.  I will not say there are days I want to give up.  There are days my daughter is less than cooperative.  When all is said and done it boils down to learning how to have life skills, learning to communicate effectively and knowing the quality time is irreplaceable.

 

 

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