Cancer Care Further Delayed

Published November 5, 2018 by lynn k scott

Friday, I was supposed to have an appointment with a new oncologist.  The insurance, without my consent, chose my doctor and told my primary doctor to have me call for an appointment.

I did and told them I don’t see male doctors (which of course, that’s who they selected because they can ignore my preference; by law).  I let the office know I needed a female oncologist.

After the new patient coordinator made a condescending remark about, “I should be able to understand her”, the appointment was booked.  I updated my phone number so they could call my cell phone if they needed to reach me.

Five minutes before I was to leave work for the appointment, a 45-minute drive from my job, I received an email cancelling the appointment.  They called the home number as my cell number was never updated (sigh + eye roll + not surprised).  They told me the staff wasn’t aware of the special conditions of my appointment.

After I called them unprofessional for pulling this stunt at the last minute, the Office Coordinator was nice enough to put in writing some clarification points.  Apparently, only one doctor agreed to see me.  It’s common practice all doctors in an office will see a patient and are backup to the primary oncologist.  Not in this case.  It would seem because of my ‘history’ only one doctor would agree to see me.

My ‘history’ turns out to be one of non-compliance.  I didn’t let that one go.  I am not non-compliant; it doesn’t exist.  What exists is a patient’s right to choose his/her treatment.  I have not completed several tests ordered because the doctor left out crucial information that negated my right to informed consent.

I couldn’t complete the CT scan that had been ordered because the facility, that is able to start an IV and add a contrast dye was unable (more like unwilling) to numb the arm before the IV was inserted.  It takes anywhere from two to four attempts to start an IV in either of my arms.  I will not be a pincushion because it’s easier for them not to inject an additional needle in my arm.

I still have no care.  I requested yet another oncologist to see me.  Now, I have to wait an additional 7 to 10 days for that approval to be reviewed.  Then I have to see if the oncologist I chose  (an hour away and a bridge toll) will see me.

Patient care, especially with a life-threatening disease, should be taken seriously and doctors should only receive the patients file with diagnosis and current treatment.  All other matters are completely subjective.  This subjective documentation has cause a lapse in care.

If you  have a moment, please click HERE, sign my petition and share it.  So many people are affected by cancer and we need to stop the health care industry from villainizing patients for choosing that best suits them.

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Wolfhound Happy Place

Published October 29, 2018 by lynn k scott

 

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Editing software changed the shot.

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This past weekend, I had another opportunity to hang out at our friend’s house and his Irish Wolfhounds and his French Bulldog.  I had an absolutely horrible week dealing with the insurance and I was so looking forward to this visit.

You’d have thought these pups were my grandkids or something.  At one point, my husband asked me, “how many pictures did you take”?  I laughed.  The answer was LOTS!

 

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Now, I was waiting on my DSLR camera to come in, but I had to settle for my cell phone.  I had previously downloaded some editing software and used it on a few of these pictures.

I cannot tell you how much fun I had following the dogs around to get just the “right” shot.  Everyone knows I visit for the dogs and the people are secondary.  They truly make me laugh, make all my problems disappear for an evening and bring out my smile (which is a rarity; esp. in photos).

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Even the kid got into the act.  (LOL)

Please enjoy this round of snippets from some amazing dogs that have become my Happy Place.

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Her brother licked the back of my head later in the evening.  I took a real shower after that.

Sutter Health Plus – Denying Proper Care

Published October 26, 2018 by lynn k scott

I’m still trying to get the care I deserve.

The latest update:

I am being forced to see a doctor, not of my choosing.  Heck, I didn’t even know I was being referred to this provider.  No one returns my calls.  Three different people were supposed to call me back; no one did.  The doctors and insurance are clueless as to what communication means.  I AM THE PATIENT!  I am to be consulted and I participate in my care – that is my right!!!

They originally set me up with a male doctor and I was told regardless of what I prefer, they aren’t mandated to accommodate me.  I finally got a to make an appointment with a non-English speaking oncologist.  I am not allowed to choose someone I would feel comfortable with.  My care cannot progress if I cannot trust my doctor.  At this point, care is functionary only.  I cannot heal properly if I am under duress at what will be added to my file because I don’t respond or act within preassigned and undisclosed parameters.  I am not allowed to give feedback or ask clarifying questions without repercussions.  Is that anyway to treat anyone, much less someone with a cancer diagnosis.

The insurance company refuses to allow me to see any other provider.  My care is being compromised.  I tried to ask the scheduling person a clarifying question (very nicely) and she loudly states, “Don’t you yell at me!”.  I hadn’t.  However, because of the derogatory notations in my account, this is the norm for every phone call.  I am accused of being rude every time I attempt to receive help.

Doctors should only be able to read medical charts.  The inaccuracies of my “dismissal” from the previous oncologist negate to mention the SEVEN requests to see other oncologists.

The blackballing of my care continues.  If there are any attorneys within N. California who can right this wrong, please contact me.

Please click HERE to sign, share and ask others to sign my petition.

 

REBLOG: Why try veganism

Published October 22, 2018 by lynn k scott

Reblogged from Tailored By Megan Taylor.  She puts veganism in perspective and makes some great points without being a “pushy vegan”.

Tailored By Megan Taylor

It’s impossible to ignore the ever-growing popularity of veganism/a plant-based life style. Whether it’s something you’ve tried or are considering trying, there’s so much that we can learn and benefit from when taking on or even just trying veganism. Whether it’s educating yourself on the environmental benefits of veganism, or just creating a vegan version of your favourite (generally un-vegan) meal, there are loads of ways to encourage yourself to make a little change.

Whilst there are so many vegan activists who claim that everyone must become vegan overnight, and whilst to some extent I do think that plant-based living is the way forward, there is no denying that a little change can go a long way. Eating plant-based a couple of days each week for example, or switching to dairy free alternatives in your home,  if every person were to do just one of those things, the effects would…

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Acorn Squash with Lentils

Published October 22, 2018 by lynn k scott

The other night I roasted acorn squash and made lentils to go with it.  It was a simple, yet hardy dish.

I used my air fryer to roast the acorn squash after brushing it with some maple syrup, a bit of coconut sugar and a sprinkle of kosher salt.  I like to prep on a cookie sheet with parchment.  It makes cleanup so much easier; esp. when using maple syrup or honey.

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Just before preparing the squash, I sauteed some diced onions in homemade vegetable broth and added a bit of garlic, freshly chopped tomatoes, salt and pepper, a bit more vegetable stock with some lentils in my Instant Pot.

When both the squash and lentil were done, I layered them (as pictured).  It was a delightful and delicious dinner.  I was so proud of myself for making this vegan dish and I didn’t use any oil in cooking the onions or garlic.

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NOTE:  You need to watch the broth so it doesn’t fully evaporate and add a tablespoon or two at a time until the the sauteing is complete.

In case you didn’t know, you can also eat the skin of the acorn squash (once it’s been cooked).  The more vegan recipes I make, the better I feel.  I can’t say it’s for everyone.  I also am not going to preach about animals and the like.  I am eating a mostly vegan diet to combat my colon cancer.

I’m trying more and more dishes that I never thought I’d eat.  Expand your horizons; try preparing a new dish today!

HAPPY EATING

Help Make My Voice Heard

Published October 15, 2018 by lynn k scott

I created a petition to alert the state of California to how cancer patients are being treated by Sutter Health.  If you could find it in your heart to sign and then reblog, share on Facebook, Twitter, or any other platform, I’d appreciate it.

It’s time we told insurance companies they can’t let doctors control who they do/don’t treat.  We are all people.  No one facing a life-threatening illness should have the stress of no treatment options because someone deemed a patient not worthy.

You can find the petition HERE.

Thank you for your support in this latest cancer development.

Kicked out of Sutter Oncology/Hematology

Published October 12, 2018 by lynn k scott

I just learned today, after following up, again, on an oncology referral, that I have been dismissed from Sutter Health Oncology/Hematology. I never received the original dismissal from my first oncologist. Apparently, after I saw my PCP for another referral, because my existing oncologist was bought out by John Muir (which they failed to advise), I was blackballed by Sutter.  I only learned of this today, over the phone that I am not allowed to see any doctor in oncology/hematolgy.

Sutter is refusing to treat a stage 3 colon cancer patient because I couldn’t understand my Russian-born oncologist. They are collecting premiums and denying care.  I went through the steps of seeing a PCP for a referral for an established disease that Sutter knew of for the previous 10-months.  Sutter told me I had to do this to see another oncologist and they knew full well I couldn’t be seen by anyone in Sutter who could treat my cancer.

My only option is to my PCP or go to urgent care; neither of which can treat my disease.  I can go to the Emergency Room but they can’t refer me to an oncologist, whom I’d have to see for follow-up care.  I am only allowed to see someone out of network and they have no one for me to see.

I am allowed to choose my doctor. It is not out of the norm for a female patient to want a female doctor. Based on the medical terminology, it is not out of the norm to insist on a doctor whom I can understand, without the aid of her staff.

Have I been challenging? Yes! Have I been rude and sworn? Yes. Why? Because I, ME, am in charge of my care. I, ALONE, determine my treatment!!!!

Doctors take an oath to treat patients. Yet, they pick and choose who they will care for. The ones who blindly go along with their godlike mentality are their preferred patients. How dare the patient question them? I am the one living and battling cancer – NOT THEM!

Please share this. Let the world know how cancer patients in Northern California are being treated.

 

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