Archives

All posts for the month January, 2018

Cancer Journey: Part 7

Published January 12, 2018 by lynn k scott

We’ve all seen the “helpful” pamphlets in the doctor’s office.  They cover a multitude of topics.  My oncologist’s office has a variety; none on colon cancer though.  Regardless of the topic, there is real life information missing from those little brochures.

Things like, how your relationships change with a cancer diagnosis.  It’s hard enough dealing with your own feelings.  You spouse/partner, family members, children all are now thrown in the mix.  It makes it difficult when you look “normal”, but your body makes doing simple things like watching a long movie or cleaning the kitchen a burden.  Let me tell you, my poor house is nothing like it used to be.  I have to give in and admit, I cannot do it all.  I wonder if my family will ever realize that?  I’m not knocking them.  I know they see me as fine, regardless of the endless pills I swallow for two straight weeks.

Another thing missing is what happens if your spouse can’t work; even temporarily?  Does it prepare you to have to surrender a vehicle because you simply don’t have the money to pay for it?  Does the state disability workers care they haven’t processed your claim in over two weeks?  Nope, they don’t; especially because you can’t reach a live person!

Let’s add just a bit of icing to this pamphlet cake of missing information.  Let’s have a clinic director call and “empathize” with you about how horrible cancer is.  Let’s have her say how much she wants me to be able to deal with this, but she cannot produce ONE local support group.  Then let’s have her reference how I work and since my schedule doesn’t accommodate the only group 30 miles away and starts before I could get there, I’m not being flexible.  To add a cherry on this frosted bunch of glossed-over, “we’re here for you” information, that she will compare “if there’s a cure 50-miles away, would it be too far to reach”.

Let’s put this in perspective.  A cure is not a support group.  A cure would negate the need for a support group.  I bet she can’t tell the difference between apples and oranges, either.  To say I’m angry is a true statement.  These medical “professionals” have either been abusive, negligent or completely not interested in hearing me and/or acknowledging me and my need for LOCAL (as in within my own city – not clear across the county) support.

I have found a group of ladies, online, who are fitting my support bill.  They are or have been through the trials and tribulations of the Big C.  I can vent and I’m not called, “inflexible”.  I can ask questions without reaching a never-ending, button pushing, automated system before reaching a nurse with an attitude who simply relays messages to/from my doctor.  Speaking to your doctor on the phone these days is a mortal sin.  You can’t possibly express yourself without the aid of a nurse misinterpreting the reason for your call.

The fundraiser is going ok, but it could be better.  I am only $40 short of being able to afford two more rounds of chemo.  I appreciate all who have, and continue to share my fundraising link.  You really have no idea how much it means to me.

These weekly cancer journey updates are to make those who watch cancer from the sidelines get a front row seat of the reality of what it’s like to deal with cancer.  It’s not about ribbons, even though I use one for this series.  Life isn’t a marketing campaign.  It’s tough, emotional, draining and those who have cancer live with an uncertainty as to what their life will be like, become and how long it will last.

 

Advertisements

Angels Walk Among Us

Published January 5, 2018 by lynn k scott

I honestly believe that angels walk among us and they take the form of friends.

A few weeks ago, I was lost.  I was having daily meltdowns regarding how I am going to pay for my cancer treatment and medications.  I was shutting down and beginning to withdraw.

I had a long-time friend invite me over to her home after church.  I was such in a bad place, I didn’t want to go.  I told her I would think about it.  She tempted me with seeing their Siberian Husky.  I have unofficially adopted him…well adopted him in the sense he is my main focus when I get to visit him; and his owners.

I relented and asked when we should be at her house.  I grabbed a toy for Kona (the Siberian).  I love that dog; even if he’s not mine.  I get through church, take a much-needed nap (thanks to my meds) and woke up in time to leave.

Standard greetings took place and then it was time to see Kona; who is normally outside – he loves it outside.  I walk out, hear a guy’s voice, who I just assumed was my friend’s boyfriend.  When I say, I go to see the dog, I’m not kidding.  I was so dog-focused, I failed to realize my son was the one holding onto the dog’s leash.  Right next to him, was my daughter-in-law and granddaughter.          20171231_165213.jpg

It’s been six years since I’ve seen my son.   He’s in the Army, so visits are few and far between and he’s stationed across the country.  Another one of my friends used air miles that would expire before she could use them and flew them all out to see me.  I had yet to meet my daughter-in-law or meet my (now) eight-month old granddaughter.

To say tears were flowing would be an understatement.  I was beyond surprised.  Several people were in on it.  They kept me going til the surprise took place.  They knew how difficult life had become and brought a beacon of light to brighten up my world.

I have had the pleasure of having my oldest and youngest together for three weeks.  We did a few low-key tourist things, but mostly stayed near home.  I still have had to work while they have been here.

Walking through my front door and to be greeted by my smiling grandbaby brings joy like nothing else.  Cooking dinner every night has been great.  My daughter-in-law LOVES mashed potatoes!  It may seem trivial, but my husband is Asian and we eat a lot of rice.  I had another person in my corner for side dishes.  My son did good marrying her.  LOL

My granddaughter celebrated her first Christmas in my home.  My daughter and son were able to celebrate their birthdays together (New Year’s Eve and New Year’s Day).  I was able to bring the “kids” to church and introduce them to my church family.  My son isn’t big on attending church, but he did so for his mom.

I will be sad when I have to take them to the airport tomorrow.  Tonight will be the last night that I will sit on the sofa, holding the baby, and giving her a bottle.  She can hold it herself, but each evening, we’ve had our little bonding time.  I will miss it greatly!

I am blessed that I have angels walking among us and I get the privilege of calling them friends.

FB_IMG_1515166030817.jpg

Leave a Link and I’ll Reblog Your Page!

Published January 4, 2018 by lynn k scott

Head over to Dream Big Dream Often. Lots of great reading material there!

Dream Big, Dream Often

 dreambigpromo02

The are only 2 simple rules to get your post reblogged on my page:

Leave me a link in the comments 

And

Reblog this post in return.

.  I’m not sure it gets much simpler.  You can leave as many links as you want in the comments and I’ll reblog your post.

View original post

A Reason

Published January 3, 2018 by lynn k scott

I can’t imagine what it must be like to tell someone, ‘you have cancer’.  I know what it’s like to find out a family member has it.  I also know what it’s like to hear those words spoken directly to you.

Cancer seems to be dominating my family.  I’m the latest recipient its chosen to challenge.  I refuse to let it remove me from this Earth.  This is a battle I WILL win!  I have started a program for local cancer warriors; in my sister’s name.  With fighting my own battle, I admit, I haven’t done a lot with the program lately.

However, I believe my own battle with colon cancer has shown me a reason for my fight.  It is utterly amazing how horrible insurance co-payments are in regards to paying for medications, doctor visits and tests.  The apathy is overwhelming.  It’s not like medical professionals know what patients are dealing with.  Non-profit foundations, that advertise co-payment assistance are nothing short of laughable.  They either refuse to assist if you have commercial insurance or funding just isn’t available.  Many will only cover Medicare or the uninsured.  Other programs are drug-specific and if you have a unpopular cancer, then your chances for assistance decline even further.

I have decided, once I beat my cancer, I will be diligently working on making the Kathi Cares Program a nonprofit.  The focus will still be supporting local cancer warriors.  However, the primary focus will shift to aiding those who need monetary assistance with prescription (and care) co-payments.

I want the assistance to be available almost immediately versus putting the applicant through weeks’ worth of waiting and worry on how they are going to cover the necessary medication or office visits.

If this is the reason I was destined to go through my own cancer battle, then challenge accepted.  I struggle with the ability to afford my own treatment.  I do have a fundraiser to aid in that.  I am too young for my cancer (as I am repeatedly told), but I have yet to find funding to assist me.  This is my only option, until I can get another job to help me pay for my treatment.

I will beat this and then I will help those who are experiencing what I am dealing with.  Together, we can make a difference.  Together we are a community.

anotheronewiththecancer

Yes I am the Cancer Curmudgeon

Renew or redo

Home refurbish projects. Decorating, Design,AndGeneral Life Activities

cancer killing recipe

Just another WordPress.com site

Reclaiming HOPE

Learning to Live Well With Fibromyalgia

Wish to Dish

Celebrating food and all the joy that comes from creating and eating it.

Skipping Stones

Musings of a Mindful Disciple

Fearless

Diagnosis of a Chronic Disease Turned My World Upside Down

XP NUGGETS

Your daily source of positivity, motivation and inspiration: Available for you in a charming consumable nugget!

Fact Based Truth

Truth based on facts

The Recipe Hunter

Cook and Enjoy