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All posts for the month September, 2018

Cancer Update: September

Published September 19, 2018 by lynn k scott

Not a whole lot to report. I am experiencing issues of anemia again.  The same symptoms when I was diagnosed (almost exactly a year ago).

I called the oncologist’s office to find out what’s going on with my CT scan.  Well, it’s on hold because of their inadequate scan coordinator.  The facility, that’s in my city, can do the scan, but refuses to administer lidocaine to numb my arm for the IV.  I have collapsing and rolling veins.  Most IVs take two or three attempts (not to mention hurting like hell on each attempt).  They don’t do that on a “clinical level”.

Seems the scan coordinator is inept at calling the patient to update them or having someone else follow-up.   It would seem, the scan coordinator isn’t able to search other hospitals to see if they might be able to accommodate a very reasonable request.  Nah – let’s not do anything…we’re only talking cancer, right?

The receptionist was gracious enough to let me know that following up wasn’t in her job description.  She agrees someone should have called but couldn’t answer who would do that.  Let’s chalk that up to “no help”, shall we?  Then she told me to feel free to call back to check on the status.  I let her know I have been symptomatic.  Gave her all the symptoms.  Anyone with half a brain, working in a hematology office knows what anemia sounds like and should make sure the patient is called back.  Yea…not this office.

I almost passed out yesterday.  I was able to stay awake for 1.5 hours after work.  I slept after work and was in bed at 9:00 and went to sleep for the evening.  Their inept attitude is robbing me of my quality of life.

Am I demanding?  Yes.  I give them an opportunity to do their job and then I take off the “kid-gloves” and let them have it.  I will not apologize for being my own advocate; esp. when patient advocacy and the online help feature have also failed me.

I submitted a referral request for a doctor, who’s an hour away.  I asked for confirmation they received the fax and confirmation when it was processed.  The fax was sent over five hours ago.  Did the doctor’s office call:  Nope!  Now I have to follow-up with them; again.

There is no excuse I am receiving such horrendous treatment.  If I end up in the emergency room, I will not be paying a bill that could have been prevented by the doctor’s office simply doing their job.

Part of the blog is to show how (cancer) patients are being treated while facing a life-threatening illness as well as documenting issues should a lawsuit be necessary.

Sutter Health Plus, based out of Sacramento, California, should be ashamed at its inability to provide healthcare based on the needs of the patients.  I shouldn’t be forced to go to a subpar facility, even if they deem it ok.

Apparently, I have Schrodinger’s Cancer:  I either have it or I don’t.  Guess we’ll never know because my health isn’t a priority to anyone but myself.

 

ribbon

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Air Fryer Brussel Sprouts

Published September 18, 2018 by lynn k scott

In my goal to be a good, ok, better vegan, I am trying vegetables and foods I never thought I would eat.  On the list of intimidating foods I don’t typically eat are brussel sprouts.

I made them a couple weeks ago in the oven.  They were ok.  Nothing to write home (or on a blog) about.

When I was at church this past week, someone mentioned making them in the air fryer.  Now why didn’t I think of that?  I use the air fryer for almost everything!

As it would happen, I purchased another bag of brussel sprouts a few days ago.  Their health benefits outweigh my desire to forego eating them.  I decided to give it a go in my air fryer.

I quartered the large pieces and halved the tiny ones.  I used a tiny bit of olive oil (maybe two teaspoons – max).  A sprinkle of salt, pepper and a dash of paprika.  I put them in a single layer in the air fryer.  Set the temperature to 400 degrees fahrenheit and cooked them for 8-10 minutes.

They turned out perfectly!  Nice and crispy.  I did drizzle about a teaspoon of balsamic vinegar on them after they were done cooking.

I highly recommend using the air fryer for these little cabbage-like veggies.  You can’t go wrong if you do.

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Living History – A 9/11 Remembrance

Published September 13, 2018 by lynn k scott

As a native New Yorker, I take September 11th very seriously.  Not only was our country attacked, but my home state was attacked.  My daughter is on the cusp of being a teenager (just a few months from now).  This year, I exposed her to what 9/11 really means.

I did my personal remembrance at work.  I posted my favorite songs, shared stories, said more prayers and felt blessed.  I had friends share their memories of the day.  I printed out pictures for the project I would have my daughter complete for her history lesson.

Out of my five children, she wasn’t born when 9/11 took place.  For her, it was a history lesson.  For me, and many others, it was the day the world stood still as we watched in horror as our country was attacked.

When I got home, we opened the laptop, I had her read the memories of family and my friends.  She saw pictures.  Her mouth was opened and she covered her mouth with her hand.  She was being exposed to what evil looked like.  She was exposed to death and terrorism.  Yet, she was also exposed to heroes.  She was exposed to the faith, kindness, love of strangers and to patriotism.

She saw her mother lose composure.  A tear escaped when we were watching images put to Alan Jackson’s, “Where We You When The World Stopped Turning”.  She saw me, got up, gave me a hug and we watched the rest of the video.  She shed a few tears.  It was emotional.  However, my reality was her history.  I, and others, are living history.  I believe it’s important to impart our knowledge with the the next and future generations.

With a few projects under her belt, we brainstormed how to complete her project.  She cut out paper, wrote bits and pieces of what she took away from her “lesson”.  She arranged, glued and taped her project into existence.  I am proud of her work.  I am honored to share such an important day with her.

I am blessed to be able to home educate.  Knowledge doesn’t always have to come from books.  Use the resources around you to live, learn and thrive.

WE WILL NEVER FORGET!

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