My Cancer Journey

All posts in the My Cancer Journey category

Cancer Care Further Delayed

Published November 5, 2018 by lynn k scott

Friday, I was supposed to have an appointment with a new oncologist.  The insurance, without my consent, chose my doctor and told my primary doctor to have me call for an appointment.

I did and told them I don’t see male doctors (which of course, that’s who they selected because they can ignore my preference; by law).  I let the office know I needed a female oncologist.

After the new patient coordinator made a condescending remark about, “I should be able to understand her”, the appointment was booked.  I updated my phone number so they could call my cell phone if they needed to reach me.

Five minutes before I was to leave work for the appointment, a 45-minute drive from my job, I received an email cancelling the appointment.  They called the home number as my cell number was never updated (sigh + eye roll + not surprised).  They told me the staff wasn’t aware of the special conditions of my appointment.

After I called them unprofessional for pulling this stunt at the last minute, the Office Coordinator was nice enough to put in writing some clarification points.  Apparently, only one doctor agreed to see me.  It’s common practice all doctors in an office will see a patient and are backup to the primary oncologist.  Not in this case.  It would seem because of my ‘history’ only one doctor would agree to see me.

My ‘history’ turns out to be one of non-compliance.  I didn’t let that one go.  I am not non-compliant; it doesn’t exist.  What exists is a patient’s right to choose his/her treatment.  I have not completed several tests ordered because the doctor left out crucial information that negated my right to informed consent.

I couldn’t complete the CT scan that had been ordered because the facility, that is able to start an IV and add a contrast dye was unable (more like unwilling) to numb the arm before the IV was inserted.  It takes anywhere from two to four attempts to start an IV in either of my arms.  I will not be a pincushion because it’s easier for them not to inject an additional needle in my arm.

I still have no care.  I requested yet another oncologist to see me.  Now, I have to wait an additional 7 to 10 days for that approval to be reviewed.  Then I have to see if the oncologist I chose  (an hour away and a bridge toll) will see me.

Patient care, especially with a life-threatening disease, should be taken seriously and doctors should only receive the patients file with diagnosis and current treatment.  All other matters are completely subjective.  This subjective documentation has cause a lapse in care.

If you  have a moment, please click HERE, sign my petition and share it.  So many people are affected by cancer and we need to stop the health care industry from villainizing patients for choosing that best suits them.

Advertisements

Sutter Health Plus – Denying Proper Care

Published October 26, 2018 by lynn k scott

I’m still trying to get the care I deserve.

The latest update:

I am being forced to see a doctor, not of my choosing.  Heck, I didn’t even know I was being referred to this provider.  No one returns my calls.  Three different people were supposed to call me back; no one did.  The doctors and insurance are clueless as to what communication means.  I AM THE PATIENT!  I am to be consulted and I participate in my care – that is my right!!!

They originally set me up with a male doctor and I was told regardless of what I prefer, they aren’t mandated to accommodate me.  I finally got a to make an appointment with a non-English speaking oncologist.  I am not allowed to choose someone I would feel comfortable with.  My care cannot progress if I cannot trust my doctor.  At this point, care is functionary only.  I cannot heal properly if I am under duress at what will be added to my file because I don’t respond or act within preassigned and undisclosed parameters.  I am not allowed to give feedback or ask clarifying questions without repercussions.  Is that anyway to treat anyone, much less someone with a cancer diagnosis.

The insurance company refuses to allow me to see any other provider.  My care is being compromised.  I tried to ask the scheduling person a clarifying question (very nicely) and she loudly states, “Don’t you yell at me!”.  I hadn’t.  However, because of the derogatory notations in my account, this is the norm for every phone call.  I am accused of being rude every time I attempt to receive help.

Doctors should only be able to read medical charts.  The inaccuracies of my “dismissal” from the previous oncologist negate to mention the SEVEN requests to see other oncologists.

The blackballing of my care continues.  If there are any attorneys within N. California who can right this wrong, please contact me.

Please click HERE to sign, share and ask others to sign my petition.

 

Acorn Squash with Lentils

Published October 22, 2018 by lynn k scott

The other night I roasted acorn squash and made lentils to go with it.  It was a simple, yet hardy dish.

I used my air fryer to roast the acorn squash after brushing it with some maple syrup, a bit of coconut sugar and a sprinkle of kosher salt.  I like to prep on a cookie sheet with parchment.  It makes cleanup so much easier; esp. when using maple syrup or honey.

20181016_181829.jpg

Just before preparing the squash, I sauteed some diced onions in homemade vegetable broth and added a bit of garlic, freshly chopped tomatoes, salt and pepper, a bit more vegetable stock with some lentils in my Instant Pot.

When both the squash and lentil were done, I layered them (as pictured).  It was a delightful and delicious dinner.  I was so proud of myself for making this vegan dish and I didn’t use any oil in cooking the onions or garlic.

IMG_20181016_182955_087.jpg

NOTE:  You need to watch the broth so it doesn’t fully evaporate and add a tablespoon or two at a time until the the sauteing is complete.

In case you didn’t know, you can also eat the skin of the acorn squash (once it’s been cooked).  The more vegan recipes I make, the better I feel.  I can’t say it’s for everyone.  I also am not going to preach about animals and the like.  I am eating a mostly vegan diet to combat my colon cancer.

I’m trying more and more dishes that I never thought I’d eat.  Expand your horizons; try preparing a new dish today!

HAPPY EATING

Help Make My Voice Heard

Published October 15, 2018 by lynn k scott

I created a petition to alert the state of California to how cancer patients are being treated by Sutter Health.  If you could find it in your heart to sign and then reblog, share on Facebook, Twitter, or any other platform, I’d appreciate it.

It’s time we told insurance companies they can’t let doctors control who they do/don’t treat.  We are all people.  No one facing a life-threatening illness should have the stress of no treatment options because someone deemed a patient not worthy.

You can find the petition HERE.

Thank you for your support in this latest cancer development.

Kicked out of Sutter Oncology/Hematology

Published October 12, 2018 by lynn k scott

I just learned today, after following up, again, on an oncology referral, that I have been dismissed from Sutter Health Oncology/Hematology. I never received the original dismissal from my first oncologist. Apparently, after I saw my PCP for another referral, because my existing oncologist was bought out by John Muir (which they failed to advise), I was blackballed by Sutter.  I only learned of this today, over the phone that I am not allowed to see any doctor in oncology/hematolgy.

Sutter is refusing to treat a stage 3 colon cancer patient because I couldn’t understand my Russian-born oncologist. They are collecting premiums and denying care.  I went through the steps of seeing a PCP for a referral for an established disease that Sutter knew of for the previous 10-months.  Sutter told me I had to do this to see another oncologist and they knew full well I couldn’t be seen by anyone in Sutter who could treat my cancer.

My only option is to my PCP or go to urgent care; neither of which can treat my disease.  I can go to the Emergency Room but they can’t refer me to an oncologist, whom I’d have to see for follow-up care.  I am only allowed to see someone out of network and they have no one for me to see.

I am allowed to choose my doctor. It is not out of the norm for a female patient to want a female doctor. Based on the medical terminology, it is not out of the norm to insist on a doctor whom I can understand, without the aid of her staff.

Have I been challenging? Yes! Have I been rude and sworn? Yes. Why? Because I, ME, am in charge of my care. I, ALONE, determine my treatment!!!!

Doctors take an oath to treat patients. Yet, they pick and choose who they will care for. The ones who blindly go along with their godlike mentality are their preferred patients. How dare the patient question them? I am the one living and battling cancer – NOT THEM!

Please share this. Let the world know how cancer patients in Northern California are being treated.

 

Still waiting…

Published October 12, 2018 by lynn k scott

Today makes two weeks since the hoop-jumping commenced.  I did as I was required; saw my PCP to get an oncology referral (even though my insurance knows I have cancer).

My PCP claims they called me to say the referral was approved and to call the oncologist.  That was pure fabrication.  I only found out, because I called a week after the appointment since I hadn’t heard anything.

This past Monday, I called the oncologist’s office and was told they hadn’t even reviewed the file yet.  They couldn’t tell me how long it would take for the doctor to review the file to see if she could even treat me.  She only reviewed files in between seeing patients.

Now my PCP was told I was having anemia symptoms, yet she didn’t flag the file with any urgency.  She put it through as a basic referral.  This is the problem with using a PCP for conditions they don’t treat.  If they are to facilitate care, then listening to the patient would be a good place to start.  If the patient deems the situation as an issue, then the doctor has an obligation to process that information accordingly; especially if they are symptomatic.

My energy levels are falling.  Day to day life is becoming more and more challenging (again).  Yet, I sit and wait because the medical profession has no sense of urgency.  I’ve upped my caffeine intake and back to taking naps the second I get home from work.

When will doctors get a clue they are messing with people’s health by their lack of concern.  They aren’t battling a life-threatening disease.  They aren’t waiting in limbo to see if the cancer has spread or new cancer has emerged.  They have all the time in the world (at this point).

Yet, I and so many like me, are dependent on a broken system that doesn’t value life.  This is our reality.  We struggle, we worry, we pray and we just wait.

Sitting in Judgement

Published October 4, 2018 by lynn k scott

I reactivated my old Facebook account.  I knew better…but, I did it anyway.

I have a very hard time with Pinktober.  It has nothing to do with raising awareness for breast cancer.  It has to do with a large number of organizations and companies cashing in on cancer.  Losing my middle sister to breast cancer and knowing my younger sister is fighting the same strain has made me more vocal.  To some, I’m jaded.

People need to understand there is not equal medical treatment, insurance or affordability nationwide.  That being said, I DO NOT agree to universal health care.  I am merely pointing out what I know as fact in California.

I will not tolerate “breast cancer awareness cookies”.  Making cookies in the shapes of obnoxious looking boobs or making them looked squished (like a mammogram would do) is not ok in my book.

Now, I worked full-time through my chemo treatments.  I was out of work a total of two weeks and that was to have the tumor removed.  I still worked, every day; from the hospital and at home.  I could not afford to live on disability.  Reluctantly, I had to start a gofundme account to pay for chemo.  I couldn’t afford it on my own.  I deleted the account after my last chemo payment was made.  Oh wait…most people don’t know my husband was out of work for two months last winter; and was taken by ambulance and hospitalized.  Nothing like more financial strain….

As you know, I recently had to purchase another vehicle.  I chose a sports car.  I was upside down on my trade, I had horrible credit.  The fact I was financed was nothing more than a miracle.  My car looks nice, but in reality, it’s the same price as a Honda.  I figure, I’ve lost so much to such a horrible disease, have been through hell this last year, it’s time to live.  At this point, I do not know if I live to finish making the car payments.  That’s MY reality.

Yet, someone still felt the need to sit in judgement of me.  Saying my car is too nice.  Those mods I’ve done are expensive.  Well, my husband has a challenger five years older than mine.  He did a lot of the work and had spare parts.  He’s also been doing show cars for over 25 years and has a lot of industry friends.  We don’t pay full price for anything.  I also work two jobs.  That’s right.  I have had cancer for a year, been off chemo for six months and picked up my second job three months after finishing chemo.

I was basically called a scam artist for having two separate parts of my life judged as the same; chemo payments and car payments.  What gives anyone the right?!

Am I jaded about the medical industry – DAMN RIGHT I AM!  I also have good reason.  I have not been shy about what I have gone through.  I do not have great care.  I am not a good patient and have been punished for that.  I have been punished for demanding that doctors and their staff allow me to be in control of my body and treatment.

I can’t stop anyone from judging me, but I’ll be damned if I am to keep quiet on the medical world’s shortcomings or the scams of Pinktober.  Just because it’s pink or coming from a charity, does not mean their intentions are good or the true patients are receiving anywhere near what is being collected.

If you are God, you may judge me.  If not…a little empathy and allowing me to vent won’t kill you.  But by hell or high water, you are not entitled to judge me (or anyone else; for that matter)!

capturing the charmed life

enjoying the sweet life as I home educate, homestead and settle into a smalltown simple life

Fabulous Realms

Worlds of Fantasy, Folklore, Myth and Legend

Gem Of The Gym

Helping You Live Your Healthiest Life, One Day At A Time

Broken Unashamed

Saved by grace. Sharing my life, heart, and soul through these words...

Sprittibee

Bloggy-Sweet Honey Goodness

Best Dog Training Tips & Tricks

Dog Training Guidance

Kristen's Healthy Living Blog

Exploring ways to live a healthier life

Chris Beat Cancer

A resource for healing cancer with nutrition and natural therapies by chemo-free survivor Chris Wark

The Godly Chic Diaries

GRACE FOR PURPOSE

A Jeanne in the Kitchen

I have created this site to help people have fun in the kitchen. Make changes, use what you have and what you like, and be creative. Cooking is supposed to be fun. Enjoy!

Simple Gourmet Cooking

Great Food Made Easy

Elves Choice

Holiday Bargains & Recipes

Kitchen Insights

Ideas And Recipes For Your Kitchen

Cooking Without Limits

Food Photography & Recipes

Mom Life With Chiari

sharing all things home, kids, faith + life

Simply Splendid Food

Food that people love and super healthy at the same time

grieftolife.wordpress.com/

Walking through the journey of pain and loss, one day at a time, with purpose. Holding on to the hope of the joy that lies ahead.

Smart Diet

Choose Weight Loss. Choose Health.