Writings by Lynn K. Scott

All posts in the Writings by Lynn K. Scott category

New Job

Published May 18, 2018 by lynn k scott

In an effort to reduce stress in my life (for a variety of reasons), I have been looking for a new job and I found one!  I have been praying for a new position.  I had been at my previous position for over five years.  While it’s not the longest time, in today’s job market, it’s still considerable.

I left a company that had HUGE turnover (seasonal workers ‘n all) and went to a company where there is just me and another lady in the office.  The entire company has less than 20 employees.  Talk about a difference!

I do have to learn an entirely new industry, but so far it’s not too bad.  Seems I have the most technological information here.  My boss just learned to check his own emails within the past year.  Yea, I said “wow” too.  I’m so used to chaos, reporting to three or four managers, keeping all their stuff straight and keeping up on my own work.

The chaos of my Human Resources (HR) job is now behind me.  Now, I’m an office coordinator/dispatcher.  I still drink coffee, take notes and take all the new information in stride.

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The best part of this job is I believe it’s an answered prayer.  My first day, my co-worker and I were speaking.  She’s a believer in Christ as well.  She told me she believes that she doesn’t follow religion, but a relationship with Him!  That’ what I, and the church I attend, believe.  This position is truly a blessing.

I have put on my HR hat already and assisted with a disability claim.  I’m reviewing their job applications for compliance and ordered some necessary documentation for the office.  I will eventually be putting a benefits program in place for the owner (one of the reasons I was hired).

My commute is 15-minutes shorter; each way.  My hours have changed, but that’s ok.  I am home two hours later every morning.  The furbabies love the new relaxed schedule.  A bonus is I am spending a third less on gas every week too!  This may not been the exact job I was looking for, however, He knew what I needed and led me to my new employer.  For that I am grateful!

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Cancer Journey: Part 12

Published April 20, 2018 by lynn k scott

My oncologist was nice enough to respond to a message I sent her office yesterday with, “what happened to the oncologist we referred you to”?   While I am not a fan of this doctor, there are literally no other doctors in the area that won’t cause me to lose at least half a day, if not a whole day from work, for each appointment.  She might as well have asked, “why are still part of my practice”?

Seems cancer wasn’t done messing with my life.  The other day, I received a message from my youngest sister’s best friend.  She found me through Facebook and sent me a private message.  I haven’t spoken to my sister in over four years.  Seems my sister was diagnosed with Stage 2 breast cancer.  It’s the same strain that took my other sister’s life.  The same sister this page honors (or tries to).

I’m not sure where our relationship is headed.  I was beyond hurt by her actions several years ago and firmly believe she was in the wrong.  I may not have been right, but I wasn’t allowed to see if I was or not.

That being said, we exchanged some messages.  She learned of my cancer.  I never told anyone who wasn’t in my life.  I didn’t want pity and I didn’t want them to care out of obligation.  I’m lucky I didn’t wear make up when I found out, because I did shed some tears.

I then thought I still have a chance of still getting breast cancer.  Having done battle with my current diagnosis, I’m not sure I could handle another one.  Then, my thoughts moved to that of my 12-year old daughter and granddaughter.  They would need to be tested in their 20s because of the family history.  I pray a cure is found before that needs to happen.  Am I holding my breath for that to happen?  Absolutely not.  I know cancer is a money maker for Big Pharma and the doctors who treat it.  They don’t want a cure because then they will lose billions of dollars with their poisonous drugs; all in the name of “treatment”.

While I keep saying I’m going to drink, I probably won’t.  Don’t need a hangover and try to get up for work.  I’m emotionally numb to this latest cancer revelation.   On the flip side, I have no tolerance for the medical world now.  I am done being nice.  I will not be placated.  I advised my oncologist’s office of my sister’s diagnosis.  Silly me thought they would know ‘kid gloves’ were now needed in dealing with me.  They are truly clueless.

As my youngest daughter has dubbed me, “NY Mommy” when I deal with anyone in the medical profession, I have chosen to embrace that term.  I no longer feel obligated to put up with medical nonsense.  I am in charge.  They either will understand this the easy way, or they will kick me out of the practice because they chose the hard way.  At this point in my life, I really don’t care either way.

I realize this isn’t Christ-like behavior.  However, I’m so overwhelmed lately, this is all I can manage.  I pray for grace and the ability to handle this situation better.  If it comes to pass, then it’s His will.  Til then, NY Mommy is in the house!

This is the reality of a cancer patient.  Pretty ribbons are nice, they have meaning, but it’s not the true showing of what cancer patients go through.  That’s what these blog posts are about.

I’m still adding my fundraiser link because I have still have expensive testing/scans that need to take place.  Any monies above that, I will donate to my sister because she’s feeling the crushing expenses of having a cancer diagnosis.

Cancer Journey: Part 10

Published March 16, 2018 by lynn k scott

It’s been a bit since my last update.  Life’s been challenging.  I thought I had a handle on things and I really don’t.  I should resign myself to Murphy’s Law and that my house is its headquarters.

Overall, exhaustion has been my new BFF.  Every weekend, I am taking extra naps just to stay functional.  I had another drawn out insurance/specialty pharmacy/doctor’s office issue.  Someone, which no one will own up to, put a notation for pre-authorization on an existing prescription (with one refill left).  This meant, I had to wait for all the different parties to do their job.  After much yelling, crying, sarcasm and general disdain, the issue has finally been resolved.  I had to constant follow-ups for anyone to do their job.  We’re not talking aspirin here, folks.  It’s chemo-medication that costs a small fortune.  You would think those in the medical field would have some compassion and a sense of urgency.  Please don’t hold your breath on that; you’ll end up dead waiting for that to happen.

I have come to the conclusion that once I receive my meds, I will be asking for a referral to a new oncologist.  It’s clear this current office isn’t working out.  I’m sure everyone there will have a small celebration to see me leave.   If you advocate for yourself, it seems you are not the correct type of patient for many of today’s doctors.

It’s sad there are more doctors who care less about working with informed patients, who are in charge in making decisions about their care.  They shouldn’t be made to feel bad about their decisions.  Have snide comments thrown at them, such as “well, you chose not to do IV chemo”.  You’re right, I chose to live my life, not be dependent on everyone, continue working, supporting my family and raising my daughter.  It’s funny, they know how expensive medication and treatment costs, but they chastise you for not giving up your job, going on disability (which doesn’t support much) and losing quality of life.  That’s what going on IV chemo would have done for me.

I working on simplifying areas of my life.  It’s definitely a work in progress.  I know the value of time, family and friends.  Right now, I’m in limbo as to if treatment is working, if I will need more, if I will find out it’s spread.  There are lots of things one can think about while being in such a limbo.  I try to focus on today and accomplish what I can.  Making memories is a top priority, should something change; not for the better.

Either way, ups and downs continue.  It’s a daily battle that I still plan on winning.  I appreciate all who have said prayers, made donations for my care, or can relate to this ongoing struggle.

 

My Chemo Fundraiser

Cancer Journey: Part 6

Published December 27, 2017 by lynn k scott

This is not the easiest post and it doesn’t have anything to do with the status of my diagnosis.

The last couple weeks have been tough.  I had to change my insurance plan, at work, and elected the “gold” versus the “silver” plan, in order to get rid of the annual deductible and bring down the usage fees when I see the doctor or get labs.  It also raised my weekly contribution costs, but it had to be done.

Unfortunately, with this plan change, came with a carrier change.  I joined the Sutter Health network and am sad to report they choose to charge patients a 20% copay for chemo medication, where other plans cover it 100% or charge a max of $50/prescription.  Hopefully, one day they realize how punitive this is and begin to cover oral chemotherapy pills as effectively as they do IV chemotherapy.

I left a plan where I was receiving negligent care and now I have a decent oncologist, but can’t afford an additional $300; every three weeks.  That includes the cost of the doctor visit, blood work and the expensive medication copays.  If I give up the ability to work (which eventually puts my job in jeopardy), submit to another surgery for a port, start IV medications, lose my independence, risk permanent side effects and not provide for my family, then the medication would be covered 100%.  Riddle me this…oral chemo is cheaper than IV treatment, but the insurance refuses to cover it 100.  Why?  Never mind; I digress.

After numerous breakdowns, I conceded I had to ask for help. I have had to resort to something I really hate doing.  I know fundraisers have helped many people and I have donated to those in need.  I was brought up that you work hard and support yourself.

I have followed the proper channels to ask for medication assistance.  It appears I was diagnosed at the wrong time of the year.  Nonprofit sources run out of money to help with prescriptions by the end of the year; that’s if they even acknowledge your disease.  Again, not all cancers are pink, but that’s where the funding is.

I have applied for part-time jobs.  I already work a full-time job, but need something to pay for my medication; even if it means working seven days a week.  I still am waiting for someone to hire me.  Problem is, I’m overqualified for the minimum wage jobs, even though I am willing to work weekends.

I have managed to get enough donations for another round of chemo.  However, I now have two weeks to raise enough money for the next round.  My pride is temporarily on a shelf and I have to post a link to my fundraiser.

If you are able to donate, even a $1.00, I would appreciate it.  If you are able to share either via blog or on your FaceBook page, that’s appreciated.  I plan on removing the fundraiser if I am hired or if some non-profit is available to help.

I apologize for having to post the link; but if I don’t raise the $300, in the next two weeks, my chemo treatment stops.  Please take a moment to read the fundraiser and if you don’t mind, share it where you can.

THANK YOU!

New Word: 2018

Published December 12, 2017 by lynn k scott

Years ago, a friend told me about a practice of picking a new word to represent you through the upcoming year.  Face it, resolutions are great for a few weeks and then our true nature breaks through and we revert back to our old habits.  Ok, a few people stick with them, but the majority doesn’t.

I was one of those people.  State your resolution, post how great you’re doing and then the topic suddenly stops coming up.  That’s why I love picking a word to represent me.  I honestly reflect on previous years.  What has happened, how I handled things, who came into or left my life, etc.

  • 2015:  Perseverance
  • 2016: Genesis
  • 2017:  Influence

All these words turned out to be extremely relative for the year they represent.  With the new year only a few weeks away, it’s time to make the word selection that I will take into 2018.  After careful consideration, the word I choose is,

SIMPLE

Why Simple?

In 2017, there have been new influences on how I view life.  I have met some AMAZING people this year.  I have received tremendous support.  I have reflected on my life, up to this point and time.  What does it come down to?  Living a simple life.  I have everything I need (except a cure).

Life really doesn’t need to be as complicated as we make it.  I am as guilty of this as the next person.  Simplifying how I choose to live will help declutter my mind and my life.  A better devotion to Christ, realizing how important family is, having friends that support you are simple ways to have a very rich life.

There you have it:  A SIMPLE recipe for the upcoming year.

Will you join me in selecting a word instead of making a resolution that you may or may not see through?  Please comment with your word if this inspires you to follow suit.

 

Cancer Journey: Part 5

Published December 8, 2017 by lynn k scott

I met with a new oncologist yesterday.  Truth be told, I had several mini-meltdowns, at work no-less, trying to get an emergency referral to this new doctor.  I’m on my “off” week for my chemo-cycle and needed the referral, be seen and have the medication ordered and delivered, by today, in order to stay on track.

Prayers were definitely answered.  If you have followed up to now, you know I have received less-than-stellar care for my cancer.  To the point, the doctors should be sued.  Yea, it was that bad.

I walk into this new office; very apprehensive.  Very nice office staff.  They pointed out coffee and tea were available, if I wanted some.  Coffee?  That HAS to be a sign!  The computer system wasn’t cooperating, and the staff was apologizing to me for the wait and having to switch rooms.  Respect?  I’m not used that.  Such a simple thing, yet so many people no longer offer common courtesies.

Then I met the doctor.  She genuinely seemed concerned.  Part of the reason is because I’m technically too young to have colon cancer; without a family history of it.  I told her, what I have told a handful of doctors, there has been a lot of different cancer in my immediate family.  She took note of it.  Then mentioned something no one else has:  Lynch Syndrome.   She thinks I may have this.  From what I have read on the syndrome, it would explain the cancer in my paternal grandmother, my father and my 37-year old sister, and of course, now me.

I have previously declined genetic testing because two previous doctors were focusing on my risk of breast cancer.  They failed to elaborate when I didn’t see a need for it.  Based on other family member’s testing, I am almost certain I have an increased risk of breast cancer.  I didn’t need a test to confirm that.

My new oncologist pointed out, if I had Lynch syndrome, it’s more than just treating me; it could affect my children.  They would have a 50% chance of having the gene that causes the syndrome, thereby increasing their risk of certain cancers.

I am extremely grateful and blessed that I have been assigned to an empathetic, compassionate and caring physician.  This is how healthcare should be.  It shouldn’t be getting patients in and out in record time with minimal information.  Communication is so crucial, yet, often downplayed because too many doctors have their routine and expect patients to conform to it.

Toward the end of the appointment, she said, “you have five children and you need to live.”  That almost brought me to tears.  My chemo has been pushed out (more cycles added).  Extra testing has been ordered.  Vitamin D has been added to my daily dose of pill consumption.  There will be a PET scan and other testing once all the chemo has been concluded.

Overall, my prayers and those praying for me have been answered.  Prayers are still needed (and welcomed) as this battle is far from over.  At least now I feel like I have a fighting chance.

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