Cancer

All posts tagged Cancer

Now for the curve ball…

Published September 15, 2017 by lynn k scott

I haven’t posted in awhile; longer than it should have been.  I’ve been struggling with my health.  For those of you who follow this blog, you’re aware I am less than a fan of the medical profession.   Ok, ok, I actually loathe it and view dealing with doctors and health facilities as a necessary evil.

I’ve had multiple issues trying to be seen for an ongoing issue.  First specialists were only working when I had to pick my daughter up from school.  Perish the thought they work past 3 o’clock.  Then, I couldn’t find a native English-speaking doctor.  Hold up…hop off that train of thought you are beginning to process.  I had a non-native doctor dismiss my symptoms because she didn’t take me seriously.  When she finds it appropriate to recommend a banana and drinking more water (without knowing my dietary habits), yup, it justifies walking out and asking for a US-born physician.  Heaven-forbid wanting an English-speaking doctor is the sin the medical practice made it out to be.  How dare I? Sorry, hiring native Spanish-speaking, Farsi-speaking, Chinese-speaking doctors, for the comfort of the patient is no different than what I was asking.  All in all, I ended up being banned for my instance on seeing a female doctor; whose first language was English.

Onto waiting for the first of the month to be seen by another practice.  Oh, I’m a new patient and haven’t been “established”.  That means my necessary appointment can wait an additional two weeks while the insurance carrier and practitioner discriminate new and established patients and refuse to give them the next available appointment.

Finally!  I see a doctor.  She regurgitates a peptic ulcer that I was treated for a year ago and I’m there to see her about the same issue as the treatment was effective.  She cannot understand my not wanting a scope stuck down my throat to test for an ulcer that I tell her I am not suffering from; that something else is wrong.  She tells me I have insurance and can’t see the big deal in my refusal.  Ummm…invasive and a 20% copay AFTER a $1500 deductible.  Welcome to the real world, Doc.  I refill the ulcer meds anyway. I message her for three days in a row:  medicine is not working.

I gave up.  She was ignoring me because I refused an unnecessary procedure.  I chose to look the other way regarding my copays and headed to the Emergency Room (ER).  The ER thanked me for coming in.  I apparently have Intussusception.   That’s being caused by Tubulovillous of the colon.

Needless to say, I am already sick of dealing with the G.I. dept, the oncology dept, as well as constant communication with my surgeon.  Yup, next week I go under the knife for a few hours to have a good section of my colon removed.  The ulcer, that two doctors said I have was actually a polyp that grew to be 10-15 cm and is blocking 80% of my colon. I paid copay after copay, because I was in PAIN.  Let me tell you, the pain is nothing short of being in second to third stage labor, for weeks at a time.  I have been trying to resolve this, actively, for over a year.  Doctors:  LISTEN TO YOUR PATIENTS!!!

I’m glad to have a diagnosis and treatment plan.  I’m not happy with knowing, every doctor I have spoken with, while telling me we will have to wait for pathology, believes I have cancer.  We have to wait for the mass to be removed and tested.

I can deal with having cancer, if that’s what the test shows.  Telling my kids, esp. my older children who watched both my parents get diagnosed and ultimately watched my father and sister lose their cancer battles is scary.  Telling my 11-year old, who is basically being raised as an only child is terrifying.  She is already emotional with my first hospital stay and my upcoming surgery and longer hospital adventure. She has heard the word, ‘cancer’, but has no idea what it truly means. Children shouldn’t feel afraid for their parents.

While my family, friends and church have been extremely supportive, whenever you are forced to face your mortality, your brain goes into overdrive.  I have given this to God.  I know he has a plan for me; even if I don’t understand it.  I am used to being independent. I don’t want those who depend on me to worry.  I just pray for strength for my family.

Advertisements

Kathi Cares Program

Published March 4, 2017 by lynn k scott

I recently took the plunge and joined Twitter.  I can’t say I’m a huge fan and the majority of my “tweets” will just be my blog posts, but hey, it’s free advertising, right?

That being said, it’s time to bump the Kathi Cares Program again.  For those of you who may be new to this blog or why I even started it, you can read more about it here.

This coming June 12th, will mark the fifth anniversary when my younger sister lost her battle to breast cancer; she was only 37 years old.  In remembering her, the Program speaks to her generosity, caring and willingness to help others.

While a few people have graciously made donations, I am primarily funding this project myself.  The goal is to become a non-profit, so I can ask for donations and those who donate will be able to have a tax write-off.  I am content helping one or two people at a time.

I would ask that if you have Facebook, you take a moment to look at the Kathi Cares Program page and see what it’s about.  If you read or see anything there that moves you, I simply ask that you share the page (or this post) so others might also benefit.

While it’s currently set up to be a local program in Northern California, the goal, one day, is to become nationwide.  I know my sister would approve and if she were still here, she’d be right here with me helping this program grow.

“Pinktober”

Published October 5, 2016 by lynn k scott

October is once again upon us.  While everything pumpkin is back, which I LOVE, I’m sure you’ve noticed all the pink that has suddenly taken over the internet and stores.

October is Breast Cancer Awareness month.  It’s nice that a horrible cancer is being acknowledged.  However, in this awesome capitalistic society we live in, the vultures circle and wait for this month to arrive.

I often tell people, “think before you pink”.  What’s that mean?  It means, with everyone jumping on the pink bandwagon, they do so more for increased sales and profits than they do for donations to cancer research and support of those who are fighting their battles with cancer.

for sis

I encourage everyone to look into the organizations and stores that have pink items for sale and promise to make donations if those items are purchased.  Do they take in hundreds of thousands of dollars?  Does 10% or more go to breast cancer victims and/or research?   Or do they rely on pulling on heart stings to loosen purse strings in order to pad their pockets and give a very minimal amount.

I won’t name names, but check out some of the organizations sponsor walks to raise funds in the name of patients and research.  See how much their CEOs are making.  See what actual percentage are being donated versus how much is being paid to overhead costs.  I’m sure if you haven’t done it already, you’ll be quite dismayed at the misappropriation of funds that occurs, based on the color pink, in the name of breast cancer.

For me, October isn’t the only day I think about breast cancer.  It’s a thought that I live with daily.  I will never forget what breast cancer has stolen from me.  The hurt and pain it’s caused.

frontIf you’re so inclined, please feel free to share this blog post so others may think before they choose to pink.

I invite you stop by the KathiCaresProgram page and follow the our progress in giving back to local cancer patients.

 

A Logo In The Works

Published January 18, 2016 by lynn k scott

It’s been a year since The Pink Herald was born.  It’s still a fledling blog, but I think it’s time for a custom logo to go with the uniqueness of my musings.  A friend of mine has volunteered to try to make my simple vision into a realistic drawing that I can use.

I have decided whatever logo comes to represent my blog, will in turn, represent my latest cause that will one day become a non-profit.  The program is still very much in its infant stage, but I’m hoping by the end of 2016 to see it at least enter the toddler stage.  If you’d like to know more about this program, dedicated to my sister’s memory, please follow its growth on Facebook:  Kathi Cares Program.

If you are so inclined, I’d be grateful for a share or two so more people can learn about a sister’s mission to help cancer patients feel like they haven’t been forgotten.

Good-bye, Goblin King

Published January 11, 2016 by lynn k scott

As I set out for this morning’s commute, I perused Facebook just one more time while the car was heating up.  My friend had posted a meme…

RIP DB

Wait!  What?!?  Headed to Google to verify.  Sure enough, David Bowie passed late in the evening, on January 10, 2016.

I was a teenager in the 80s and that included listening to David Bowie’s music.  “Modern Love” was by far my favorite of his songs.  Of course, who could forget Bowie starring as Jareth, the Goblin King, in the 1986 movie, “Labyrinth”? While I’m not really a fan of fantasy movies (or books), this one had me hook, line and sinker.

Needless to say, music has lost another great performer.  I’ve reached the stage in my life, where I can appreciate when my mother used to be heartbroken over actors and performers passing.  As a kid you don’t quite understand this.  It’s hard to ignore one’s own mortality when your idols fall to human ailments and/or old age.  Sadly, cancer has won another battle.

Rest In Peace, Goblin King.  You will surely be missed!

Jarethehadshot

labryinth.wikia.com

 

Has it really been a year?

Published November 2, 2015 by lynn k scott

I was standing at the sink, cleaning up after tonight’s dinner and realized that it will be a year, this month, that I created the Pink Herald blog.  I never expected over 150 followers, to my somewhat sporadic writing.  I never expected to find such comfort and peace in sharing my random tid-bits.  Let’s not forget how much cheaper blogging is to therapy.  While, at times, I have sat at the kitchen table, tears streaming down my face as I told my stories, it’s been such a blessing.

Even though my life is still somewhat chaotic, I am more content and comforted by how this past year has played out. While my only surviving sister and I have cut ties, I am ok with it.  I have rejoined the local Blue Star Mothers chapter and even was elected back to the board as Vice President.  My lil miss and I found a local homeschool group that was so supportive and enlightening.  We’re still part of that group, even though we recently made the decision to send my daughter to a private, Christian school.  She’s LOVING it by the way.

I have found a church to call home.  I am now assisting them in the social media realm and have recently been asked to take over the bi-weekly newsletter, while a fellow church member is recovering from cancer.  I was honored to be asked.

We got new neighbors and they are a breath of fresh air.  They are outgoing, kind and we’re becoming good friends.  Our girls all get along and I feel safe with my daughter playing at their house.  I never worry when she’s there.  Folks just aren’t that neighborly in cities anymore.  I miss that and I’m glad we have the opportunity to get to know each other.

My proudest accomplishment this year is the birth of The Kathi Cares Program; in my sister’s honor.  If you missed what the program is about, you can read all about it here. Since coming up with idea and sharing it, a local massage therapist has offered to give gift certificates for the cancer patients.  My close and very inspirational friend, has already donated $25 and I can purchase my first gift card for this December’s recipient.  I even have a PayPal account established in order to help secure donations.  I will work to grow this program into an inspiring, community-based, non-profit.

I have read some truly wonderful, funny, tearful blogs in the last year.  I thank all those who take the time to put their thoughts into words.  I appreciate those who find my blog worthy of following.

Here’s to another adventures year, while tip-tapping on my laptop to put my my brain dictates what shall be in written form.

Fearless

Diagnosis of a Chronic Disease Turned My World Upside Down

XP NUGGETS

Your daily source of positivity, motivation and inspiration: Available for you in a charming consumable nugget!

Fact Based Truth

Truth based on facts

The Recipe Hunter

Cook and Enjoy

The Purple Almond

Where food is medicine.

Wedbites

"The Most Important Part of the Most Important Day of Your Life"

Mommy Usage

Perfectly Imperfect. Always Working Toward Better.

But I Smile Anyway...

Musings and memories, words and wisdom... of a working family woman

A Thomas Point of View

My high horse journalistic point of view

Agatha Chocolats

Mystery Writer & Chocolate Enthusiast

Jo Robin Blog

2am Conversations ● College ● Unqualified Advice on Adulting ● Awkward Dates ● Catholicism