Cancer

All posts tagged Cancer

Cancer Hope

Published July 5, 2018 by lynn k scott

I am part of an online Christian homeschool group.  I have been blessed to part of this group.  They offer support and encouragement in homeschooling and every day living.

I had posted a difficult post asking for some recommendations.  In addition to the information I had asked for, I was given the name of a person to contact.  As it turns out, this person had a very similar diagnosis to mine.

We exchanged messages yesterday and she was the blessing I needed to receive.  After almost a year since diagnosis, I had finally connected to someone I could relate to.  Like I have, she had turned her care over to God after her surgery.  She changed her diet and is now cancer-free.

I am currently in the process of changing my diet.  While science and doctors would admonish my decision to omit their “expert” advice, what I have received so far from them has been less than productive in my battle with cancer.

While I can’t speak for what others should do, I find her story to be extremely encouraging and it has given me new hope; hope I was struggling with.

 

hear me lord

Advertisements

Cancer Journey: Part 16

Published July 2, 2018 by lynn k scott

I believe this will be the last cancer update for some time.

I met my new oncologist this past Friday.  While she seemed genuine and sincere, it was an effort in futility.   I had a complete breakdown when she asked why I was there.  I clearly stated it was because she was my last option for a doctor; based on what the insurance carrier would permit.   She didn’t didn’t take offense; esp. after I explained what I meant.

She wanted to order a PET scan.  Awesome…I can’t stay still, flat on my back for 30-minutes.  She asked if a particular drug would help relax me.  I have no idea as I haven’t had it in almost 30 years.  She said she could order a CT scan, but that might be inconclusive and it’s not as complete as a PET scan.  I still might need a PET scan after the CT scan.  That pretty much sums up the CT scan is not the way to go.  Each of these scans would cost me a $350 copay.  Let’s not even mention having to add an IV to do them.  My veins have been oh-so-cooperative (NOT).

She mentions how I didn’t receive enough chemo.  Gotta love my previous doctors  (I need a “NOT” button).  She went over another option, that wasn’t clearly explained to me by my first oncologist.  So there goes adequate informed consent.

Then, she had the “brilliant” idea of telling me I should see a counselor about my grief for 3/5 of my family being dead (mostly due to cancer).  How about addressing the issue of NO SUPPORT for cancer patients that are still alive and breathing?!  How about offering legitimate financial support.  People are struggling to pay their every day bills.  Add a 20% copay to all their medications (even if each one caps out at $200), that’s still a huge increase every few weeks.  Let’s not mention, the patient probably wouldn’t be working full-time either, so now there’s a loss of income but increase in expenses.  The working person falls through healthcare crack which is the size of the Grand Canyon.

We agreed to start off with more bloodwork after I told her I guess there was nothing she could do for me.  I asked the nurse who was going to talk to the lab about how I’m a hard stick.  She told me I could let them know.  Gee….that’s worked really well in the past…again…NOT!  They make no offer to warm my veins to see if that would help.  They do nothing different than a person who is able to give blood easily.  I drink tepid water already (which was her suggestion).  First, I’m not new to blood draws.  Second, it’s obvious she had no intention of doing anything additional for patient care.

I’m supposed to go back in six months.  The nurse really thought she was going to schedule that after my appointment.  I think not.  IF I were to go back, I would call in.  six months is in December.  I have my daughter’s birthday to deal with.  It would be January at the earliest that I would even consider going back in.

I walked out no further along than I have been these last few months.  I am officially done, at least for the immediate future, with doctors, blood draws, scans and anything else related to this effin diagnosis.

My survival is solely in God’s hands.  I am changing my diet and will be trying CBD oil for cancer patients.  While I will not go gently into that good night, I no longer have any faith in the medical world and their attempts to treat me.

Being the realist that I am, I am now officially putting my affairs in order (just in case).  I will be drawing up a living trust and making my husband add his information because he won’t do it on his own.  We don’t have may assets, but the few we do have need to go to my youngest (as most of it belongs to her dad).

I ask for continued prayers for my health and for the strength to prepare my daughter for the worst case scenario.

Cancer Journey: Part 15

Published June 28, 2018 by lynn k scott

Tomorrow I meet a new oncologist.  I had to call to confirm my appointment, as I hadn’t received a reminder call.  The woman laughed it off that she hadn’t sent out any reminders.  That’s all well and good, however, I’m traveling 30 minutes out of my way and losing a half a day’s work, so I don’t have the luxury to hope everything is still on schedule.

I have been re-reading my previous oncologist’s visit comments.  They still have not fixed the part where my sister died of breast cancer at 37; not 47.  They have only been told three times now.  They make me seem like a bitch for refusing IV chemo because it’s the treatment they would have preferred.  My original oncologist said outright they could not confirm I did or didn’t still have cancer.  They were going to treat me as if I did; just in case.  Silly me for wanting a definitive answer and to have a somewhat normal life with such vague information from a “professional”.

They villianized me for refusing tests that exposed me to additional radiation without a legitimate cause.  I also had stated that tests need to be coordinated that required IVs.  My veins rolls and collapse, but they don’t consider that when they schedule tests.

I am not holding out much hope for tomorrow’s visit.  We will have to go through all the questions that have been already answered and are in my file.  It’s too much to ask for doctor’s to read before meeting a new patient.  Wasting time is the preferred interaction method.

I know she will order more blood work.  Let’s hope my veins cooperate.  Who knows if she will order the CT scan that I believe should have been done already.  A point my previous oncologist and I did not see eye to eye on.

My anxiety is messing with my sleep again.  I just need this appointment to be over.  Then I get to wait to see if my levels are elevated (which would indicate the cancer is still there).  Waiting games suck; moreso when your very existence is on the line.

No matter what happens, cancer still sucks!

Cancer Journey: Part 14

Published June 21, 2018 by lynn k scott

After yet another phone call with Sutter Health, my oncology referral to Sacramento was denied.  The reason is the doctor is limiting her practice.  They referred me back to Vallejo.  I lived in Vallejo for eight years.  It’s gotten progressively worse and we moved away from that cesspool over six years ago.

I will be getting to see a native-English speaking doctor.  However, she is only in Vallejo one day a week, because her primary office is in a better city.   Colored me surprised…

I tried to make the appointment yesterday, only to be told the new patient coordinator was already gone for the day.  What?  It was 2:15 p.m.  Must be nice.  I left a voicemail that I needed to make an appointment and asked her to return my call.

Now, I tried to schedule an appointment with this provider three months ago.  They were unable to accommodate my schedule and Valerie, the coordinator, either hates her job or believes she is above us poor cancer patients.  I had the displeasure of dealing with her again.

Conversation starts with her calling me back and asking how she could help me.  Ummm…I know I left a message regarding booking an appointment (you know…you’re job – but I didn’t say that).  So, we had to start from scratch.  She never bothered to look for my referral before calling me back.  She had the wrong address (even though I corrected it last time we spoke and it was on the referral).  She didn’t like my exasperated tone.  She kept telling me to stop yelling at her.  At that point, I wasn’t.  However, after the third time she said it, and I told her she was part of the problem, she said, “did you just hear yourself?”

It was then I asked for her supervisor.  I wasn’t going to tolerate her crap a second time around.  Even my coworker, who could hear everything, and knows I wasn’t initially yelling, said, “I can’t believe how much trouble they are causing you.”  See, it’s not just me.  Part of the biggest obstacle of seeing a provider is their staff.  I finally raised my voice at Valerie, didn’t want to make a liar out of her, requested her supervisor and muttered a few not-so-nice words.  Ooops…she heard me…oh well…

Spoke to the supervisor and she starts to tell me that the doctor doesn’t go to the city I live in.  Umm…DUH!  I never said I wanted to see her there.  I knew she was in Vallejo and that’s I was trying to make the appointment.  Valerie couldn’t even get that straight.  We made the appointment.  I was supposed to receive a form to authorize the release of my records.  Three hours later…NOTHING!

I found the form online (which the supervisor should have known it was there).  Completed it, called for the fax number and printed the confirmation that it went through.

So now I sit and wait until my appointment next week.  The only benefit of seeing this doctor is that if I have to have any procedures, I will cross the bridge (same distance as going to Sacramento) and be seen in a better facility, in a better city.

Physicians and their staff need to be held to some sort of standard by the insurance carrier.  Patients need to have a recourse against them and their ‘holier than thou’ attitude.

I admit, I am less-than Christlike in my dealings with the medical community.  I attempt to “behave” for every interaction, yet it rarely plays out that way.  I keep praying for tolerance, but I’m not great at waiting for a response.  I have been “labeled” by my insurance and the providers; almost like a medical blackball.  I’m not giving up and I’m going to raise Cain, Hell and whatever else needs raising til patients are seen as people who need help; attitude be damned!

Sutter Health Insurance

Published June 19, 2018 by lynn k scott

I am not an easy patient.  I have little regard for the insurance industry and the doctors it employs.  I have become less than tolerant of the medical world since my cancer diagnosis.

Sutter Health Plus is the health insurance I have.  It’s the least evil of the three options I had to choose from.  That being said, they are far from acceptable.  They care little for their patients.

On Sutter’s website, it boasts how important it is to have a doctor you feel comfortable with.  That is a fallacy.  They don’t care how far you have to travel to see a doctor.  They don’t care if you don’t want to be seen in a certain area.  They don’t care that you can’t understand who they pick for you; even after declining their physician option (multiple times).  They prefer to hire immigrant doctors compared to native-English speaking doctors.  Where medical terminology is a factor, being able to understand your physician is paramount.  Apparently, that only applies if you want to see anyone but an native-English speaking doctor.  They hire for every other language, but English is overrated.  How “PC” of them….I digress.

You can make complaint after complaint about not receiving care, but NO ONE calls you for more information.  Non-doctors simply review your file and regurgitate their initial form letter and continually resend that information to you.

They can get you an appointment in the doctor of their choice, where you don’t want to go and ignore the fact you may have employment obligations to meet.  Did I mention they will give you an appointment out of your area and when you’re not available?

Providers are allowed to drop patients prior to making sure an acceptable referral has been found.  They fail to notify the patients of the change in providers.  Nurses refuse to let you speak to providers.  The online emails are answered by nurses and not doctors.  You get the privilege of playing the adult version of “telephone”.  You never know what their response is going to be, but it rarely is regarding the original issue you are inquiring about.

They claim physicians are required to tell you that they are kicking you out of their practice.  Well, I guess finding out, via another form letter, on a different subject is their view of “notification”.

Do I hang up on them…sure do!  I say what needs saying.  They ignore what I say but mark the notes that “contact was made and patient hung up”.  They fail to mention patient stated their option wasn’t viable.  Patient can’t understand who they assign, but as long as they cover their ass with a half-assed note, I guess they did their job, right?

This is how Sutter Health Plus treats cancer patients.  Western Health Insurance does the same.  They are such a small insurance company, they allow doctors to kick patients out, after ignoring patient concerns.

Keep telling the patient they have an ulcer.  Get irritated with patient because she refuses a G.I. referral.  Blame patient for “refusing care”.  Patient goes to the emergency room, where they have to treat her.  Low and behold, patient was right – it WASN’T an ulcer.  It was a Stage 3 tumor, blocking almost 100% of the colon.  Patient could have died, but hell, as long as the insurance companies continue to make sure they are “PC”, health care of individuals be damned.

I am sure there must be some diligent doctors somewhere, but the insurance carriers, call center staff (because you can no longer call a doctor’s office directly) and their nurses hinder receiving effective and timely treatment.

I will no longer be silent.  The insurance industry needs to change; esp. when it’s an HMO.  Patients are required to jump through hoops to “establish” with providers and to obtain referrals, but the doctors are not required to treat them.

Enough is enough.  Please share.  Silence is compliance!

Angelversary: 6 years

Published June 12, 2018 by lynn k scott

Today marks the 6th angelversary of the loss of my younger sister, Kathi.  This blog was created to honor her memory.  It was also created as my therapy to cope with my survivor’s guilt.  It’s hard losing a sibling, especially one that’s younger than you.

Treasure

Even though my eyes still leak from time to time or they turn into a fountain when memories come rushing back, I have finally found acceptance in her death.  A lot has happened in the last few years and I have grown much closer to God.

Missing you

I can’t begin to understand why she was called Home at the tender age of 37.  I don’t know why her children had to grow up without a mother.  Those questions will remain a mystery as I have stopped looking for an answer.  What will be, will be.

I do know life is precious.  It’s easily wasted with arguments, fights and alienation of family and friends.  Be there for those who need you.  Express affection sooner than later.  We need to live for today, because as life has taught me, no one gets an extension when your time is up.

It’s ok to grieve.  It’s ok to take as much time as you need to process a loss.  I will never get over losing my sister.  However, I can remember her spirit and know she will always be watching over me.  I can continue projects she found important.  I can get the Kathi’s Cares Program into non-profit status so I can show other cancer patients they are not alone.  Cancer, in all forms, is a horrible disease.  It’s time to find a cure and let doctors and pharmaceutical companies know our lives are not for profit.  cancer

Updated: God in my life

Published May 31, 2018 by lynn k scott

I’ve been reviewing some of my previous writings.  I thought with June looming around the corner, it would be a good time to reflect on God in my life.  I wrote the original, “God In My Life” a year ago.  Since then, I have been diagnosed with Stage-3 colon cancer and my youngest sister, whom I’ve somewhat reconnected with, has been diagnosed with Stage-2 breast cancer.  While I am fighting cancer with everything I’ve got, I never went through the “why me” phase.  I truly trust God has a plan for me.

I am still with Simple Church and they have been beyond supportive.  I know I was led there before my cancer diagnosis was brought to light. For that, I am eternally grateful!  I am thankful for everyone who has prayed, and continues to pray for me.  Prayer really does work.

 

capturing the charmed life

enjoying the sweet life as I home educate, homestead and settle into a smalltown simple life

Fabulous Realms

Worlds of Fantasy, Folklore, Myth and Legend

Gem Of The Gym

Helping You Live Your Healthiest Life, One Day At A Time

Broken Unashamed

Saved by grace. Sharing my life, heart, and soul through these words...

Sprittibee

Bloggy-Sweet Honey Goodness

Best Dog Training Tips & Tricks

Dog Training Guidance

Kristen's Healthy Living Blog

Exploring ways to live a healthier life

Chris Beat Cancer

A resource for healing cancer with nutrition and natural therapies by Chris Wark

The Godly Chic Diaries

BY GRACE THROUGH FAITH

A Jeanne in the Kitchen

I have created this site to help people have fun in the kitchen. Make changes, use what you have and what you like, and be creative. Cooking is supposed to be fun. Enjoy!

Simple Gourmet Cooking

Great Food Made Easy

Elves Choice

Holiday Bargains & Recipes

Kitchen Insights

Ideas And Recipes For Your Kitchen

Cooking Without Limits

Food Photography & Recipes

Mom Life With Chiari

sharing all things home, kids, faith + life

Simply Splendid Food

Food that people love and super healthy at the same time

Grief to Life

Walking through the journey of pain and loss, one day at a time, with purpose. Holding on to the hope of the joy that lies ahead.

Smart Diet

Choose Weight Loss. Choose Health.