colon

All posts tagged colon

Cancer Journey: Part 12

Published April 20, 2018 by lynn k scott

My oncologist was nice enough to respond to a message I sent her office yesterday with, “what happened to the oncologist we referred you to”?   While I am not a fan of this doctor, there are literally no other doctors in the area that won’t cause me to lose at least half a day, if not a whole day from work, for each appointment.  She might as well have asked, “why are still part of my practice”?

Seems cancer wasn’t done messing with my life.  The other day, I received a message from my youngest sister’s best friend.  She found me through Facebook and sent me a private message.  I haven’t spoken to my sister in over four years.  Seems my sister was diagnosed with Stage 2 breast cancer.  It’s the same strain that took my other sister’s life.  The same sister this page honors (or tries to).

I’m not sure where our relationship is headed.  I was beyond hurt by her actions several years ago and firmly believe she was in the wrong.  I may not have been right, but I wasn’t allowed to see if I was or not.

That being said, we exchanged some messages.  She learned of my cancer.  I never told anyone who wasn’t in my life.  I didn’t want pity and I didn’t want them to care out of obligation.  I’m lucky I didn’t wear make up when I found out, because I did shed some tears.

I then thought I still have a chance of still getting breast cancer.  Having done battle with my current diagnosis, I’m not sure I could handle another one.  Then, my thoughts moved to that of my 12-year old daughter and granddaughter.  They would need to be tested in their 20s because of the family history.  I pray a cure is found before that needs to happen.  Am I holding my breath for that to happen?  Absolutely not.  I know cancer is a money maker for Big Pharma and the doctors who treat it.  They don’t want a cure because then they will lose billions of dollars with their poisonous drugs; all in the name of “treatment”.

While I keep saying I’m going to drink, I probably won’t.  Don’t need a hangover and try to get up for work.  I’m emotionally numb to this latest cancer revelation.   On the flip side, I have no tolerance for the medical world now.  I am done being nice.  I will not be placated.  I advised my oncologist’s office of my sister’s diagnosis.  Silly me thought they would know ‘kid gloves’ were now needed in dealing with me.  They are truly clueless.

As my youngest daughter has dubbed me, “NY Mommy” when I deal with anyone in the medical profession, I have chosen to embrace that term.  I no longer feel obligated to put up with medical nonsense.  I am in charge.  They either will understand this the easy way, or they will kick me out of the practice because they chose the hard way.  At this point in my life, I really don’t care either way.

I realize this isn’t Christ-like behavior.  However, I’m so overwhelmed lately, this is all I can manage.  I pray for grace and the ability to handle this situation better.  If it comes to pass, then it’s His will.  Til then, NY Mommy is in the house!

This is the reality of a cancer patient.  Pretty ribbons are nice, they have meaning, but it’s not the true showing of what cancer patients go through.  That’s what these blog posts are about.

I’m still adding my fundraiser link because I have still have expensive testing/scans that need to take place.  Any monies above that, I will donate to my sister because she’s feeling the crushing expenses of having a cancer diagnosis.

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A Reason

Published January 3, 2018 by lynn k scott

I can’t imagine what it must be like to tell someone, ‘you have cancer’.  I know what it’s like to find out a family member has it.  I also know what it’s like to hear those words spoken directly to you.

Cancer seems to be dominating my family.  I’m the latest recipient its chosen to challenge.  I refuse to let it remove me from this Earth.  This is a battle I WILL win!  I have started a program for local cancer warriors; in my sister’s name.  With fighting my own battle, I admit, I haven’t done a lot with the program lately.

However, I believe my own battle with colon cancer has shown me a reason for my fight.  It is utterly amazing how horrible insurance co-payments are in regards to paying for medications, doctor visits and tests.  The apathy is overwhelming.  It’s not like medical professionals know what patients are dealing with.  Non-profit foundations, that advertise co-payment assistance are nothing short of laughable.  They either refuse to assist if you have commercial insurance or funding just isn’t available.  Many will only cover Medicare or the uninsured.  Other programs are drug-specific and if you have a unpopular cancer, then your chances for assistance decline even further.

I have decided, once I beat my cancer, I will be diligently working on making the Kathi Cares Program a nonprofit.  The focus will still be supporting local cancer warriors.  However, the primary focus will shift to aiding those who need monetary assistance with prescription (and care) co-payments.

I want the assistance to be available almost immediately versus putting the applicant through weeks’ worth of waiting and worry on how they are going to cover the necessary medication or office visits.

If this is the reason I was destined to go through my own cancer battle, then challenge accepted.  I struggle with the ability to afford my own treatment.  I do have a fundraiser to aid in that.  I am too young for my cancer (as I am repeatedly told), but I have yet to find funding to assist me.  This is my only option, until I can get another job to help me pay for my treatment.

I will beat this and then I will help those who are experiencing what I am dealing with.  Together, we can make a difference.  Together we are a community.

Diagnosis: The Big “C”

Published October 12, 2017 by lynn k scott

My blogging isn’t up to par as I have slacked off considerably with making sure I post at least once a day.

I grew tired of primary care physicians passing the buck, their staff refusing to schedule appointments (while in severe pain) because I wasn’t ‘nice enough’, being ignored when discussing symptoms or just regurgitating a previous ailment.  I took myself to the emergency room (at an expensive cost; considering my copay).

Well, I was right!  There was something wrong; seriously wrong.  When all the testing was said and done…a mass about five inches long, blocking 80% of my colon was discovered.  Major surgery was in my immediate future.

After a scheduling fiasco with the hospital, the surgery was finally completed.  The mass sent to pathology for testing.  A week later, the report was in:  Stage 3 colon cancer.  I had managed to convince myself the mass would be benign.  I recovered so quickly from surgery.  All was well again…silly me…I knew better than that!

Let’s recap (if you don’t follow my blog)….

  • Father:  Stomach cancer – Stage 4 (passes within 3 weeks of diagnosis)
  • Mother:  Non-Hodgkins Lymphoma (beats it – but passes for another reason)
  • Younger Sister:  Breast cancer – Stage 4 (passes within 9 months of diagnosis)

I now have joined the rest of my family.  There are only two of us left, out of the original five members in our immediate family.   Four out of five people in one family being diagnosed with cancer…what are the odds?  Don’t answer that!

If my faith wasn’t so strong, I’d be a complete basket case.  Have I shed a tear or two?  Of course!  You’d have to have a heart cold as ice not to have such a diagnosis elicit some type of emotion when learning you have cancer and stage 3; at that.  Truth be told, this is the calmest I’ve been about a major life event.  I know that’s God’s grace.

I know He has a plan for me.  I wish it didn’t involve this disease.  However, I have many friends and family praying for me.   I have found an amazing church that has been incredible in supporting me.  As it stands, I have a 57% chance, without any further treatment, the cancer is gone.  Treatment will increase those odds, as there isn’t a test to say I still have the cancer.

What hit me hardest?  Telling my older children, who watched their grandparents and aunt pass away, that their mom was now sick.  Then, telling my youngest, who only knew a little of what claimed her aunt, at the tender age of 37, her mom had a similar disease.

Most days I’m good.  Very tired as I am extremely anemic at this point.  Other days, I’m angry.  I’ve dealt with so much already.  I didn’t, “why me?” the issue.  It is what it is.  I am doing my best to stay positive, especially for my youngest; the only child at home.

My perspective has sharpened a bit.  I’ve jotted down some details should the worst case scenario come full circle.  Not being a stranger to cancer and what it can ultimately do, I am capable of making decisions that I don’t want to leave to family.  It’s unfair to make them have to make decisions on my behalf.

I will go through the motions.  I’ll probably be in debt trying to pay for medications, increased insurance premiums and everything else that goes with having to say, “I have cancer”.

I will not be pitied.  I will accept prayers, visits, bonding with family and friends and knowing making memories is extra special now.  I am also continuing to work on the Kathi Cares Program, which supports local cancer warriors.

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