fundraiser

All posts tagged fundraiser

Cancer Journey: Part 7

Published January 12, 2018 by lynn k scott

We’ve all seen the “helpful” pamphlets in the doctor’s office.  They cover a multitude of topics.  My oncologist’s office has a variety; none on colon cancer though.  Regardless of the topic, there is real life information missing from those little brochures.

Things like, how your relationships change with a cancer diagnosis.  It’s hard enough dealing with your own feelings.  You spouse/partner, family members, children all are now thrown in the mix.  It makes it difficult when you look “normal”, but your body makes doing simple things like watching a long movie or cleaning the kitchen a burden.  Let me tell you, my poor house is nothing like it used to be.  I have to give in and admit, I cannot do it all.  I wonder if my family will ever realize that?  I’m not knocking them.  I know they see me as fine, regardless of the endless pills I swallow for two straight weeks.

Another thing missing is what happens if your spouse can’t work; even temporarily?  Does it prepare you to have to surrender a vehicle because you simply don’t have the money to pay for it?  Does the state disability workers care they haven’t processed your claim in over two weeks?  Nope, they don’t; especially because you can’t reach a live person!

Let’s add just a bit of icing to this pamphlet cake of missing information.  Let’s have a clinic director call and “empathize” with you about how horrible cancer is.  Let’s have her say how much she wants me to be able to deal with this, but she cannot produce ONE local support group.  Then let’s have her reference how I work and since my schedule doesn’t accommodate the only group 30 miles away and starts before I could get there, I’m not being flexible.  To add a cherry on this frosted bunch of glossed-over, “we’re here for you” information, that she will compare “if there’s a cure 50-miles away, would it be too far to reach”.

Let’s put this in perspective.  A cure is not a support group.  A cure would negate the need for a support group.  I bet she can’t tell the difference between apples and oranges, either.  To say I’m angry is a true statement.  These medical “professionals” have either been abusive, negligent or completely not interested in hearing me and/or acknowledging me and my need for LOCAL (as in within my own city – not clear across the county) support.

I have found a group of ladies, online, who are fitting my support bill.  They are or have been through the trials and tribulations of the Big C.  I can vent and I’m not called, “inflexible”.  I can ask questions without reaching a never-ending, button pushing, automated system before reaching a nurse with an attitude who simply relays messages to/from my doctor.  Speaking to your doctor on the phone these days is a mortal sin.  You can’t possibly express yourself without the aid of a nurse misinterpreting the reason for your call.

The fundraiser is going ok, but it could be better.  I am only $40 short of being able to afford two more rounds of chemo.  I appreciate all who have, and continue to share my fundraising link.  You really have no idea how much it means to me.

These weekly cancer journey updates are to make those who watch cancer from the sidelines get a front row seat of the reality of what it’s like to deal with cancer.  It’s not about ribbons, even though I use one for this series.  Life isn’t a marketing campaign.  It’s tough, emotional, draining and those who have cancer live with an uncertainty as to what their life will be like, become and how long it will last.

 

Advertisements

A Reason

Published January 3, 2018 by lynn k scott

I can’t imagine what it must be like to tell someone, ‘you have cancer’.  I know what it’s like to find out a family member has it.  I also know what it’s like to hear those words spoken directly to you.

Cancer seems to be dominating my family.  I’m the latest recipient its chosen to challenge.  I refuse to let it remove me from this Earth.  This is a battle I WILL win!  I have started a program for local cancer warriors; in my sister’s name.  With fighting my own battle, I admit, I haven’t done a lot with the program lately.

However, I believe my own battle with colon cancer has shown me a reason for my fight.  It is utterly amazing how horrible insurance co-payments are in regards to paying for medications, doctor visits and tests.  The apathy is overwhelming.  It’s not like medical professionals know what patients are dealing with.  Non-profit foundations, that advertise co-payment assistance are nothing short of laughable.  They either refuse to assist if you have commercial insurance or funding just isn’t available.  Many will only cover Medicare or the uninsured.  Other programs are drug-specific and if you have a unpopular cancer, then your chances for assistance decline even further.

I have decided, once I beat my cancer, I will be diligently working on making the Kathi Cares Program a nonprofit.  The focus will still be supporting local cancer warriors.  However, the primary focus will shift to aiding those who need monetary assistance with prescription (and care) co-payments.

I want the assistance to be available almost immediately versus putting the applicant through weeks’ worth of waiting and worry on how they are going to cover the necessary medication or office visits.

If this is the reason I was destined to go through my own cancer battle, then challenge accepted.  I struggle with the ability to afford my own treatment.  I do have a fundraiser to aid in that.  I am too young for my cancer (as I am repeatedly told), but I have yet to find funding to assist me.  This is my only option, until I can get another job to help me pay for my treatment.

I will beat this and then I will help those who are experiencing what I am dealing with.  Together, we can make a difference.  Together we are a community.

Cancer Journey: Part 6

Published December 27, 2017 by lynn k scott

This is not the easiest post and it doesn’t have anything to do with the status of my diagnosis.

The last couple weeks have been tough.  I had to change my insurance plan, at work, and elected the “gold” versus the “silver” plan, in order to get rid of the annual deductible and bring down the usage fees when I see the doctor or get labs.  It also raised my weekly contribution costs, but it had to be done.

Unfortunately, with this plan change, came with a carrier change.  I joined the Sutter Health network and am sad to report they choose to charge patients a 20% copay for chemo medication, where other plans cover it 100% or charge a max of $50/prescription.  Hopefully, one day they realize how punitive this is and begin to cover oral chemotherapy pills as effectively as they do IV chemotherapy.

I left a plan where I was receiving negligent care and now I have a decent oncologist, but can’t afford an additional $300; every three weeks.  That includes the cost of the doctor visit, blood work and the expensive medication copays.  If I give up the ability to work (which eventually puts my job in jeopardy), submit to another surgery for a port, start IV medications, lose my independence, risk permanent side effects and not provide for my family, then the medication would be covered 100%.  Riddle me this…oral chemo is cheaper than IV treatment, but the insurance refuses to cover it 100.  Why?  Never mind; I digress.

After numerous breakdowns, I conceded I had to ask for help. I have had to resort to something I really hate doing.  I know fundraisers have helped many people and I have donated to those in need.  I was brought up that you work hard and support yourself.

I have followed the proper channels to ask for medication assistance.  It appears I was diagnosed at the wrong time of the year.  Nonprofit sources run out of money to help with prescriptions by the end of the year; that’s if they even acknowledge your disease.  Again, not all cancers are pink, but that’s where the funding is.

I have applied for part-time jobs.  I already work a full-time job, but need something to pay for my medication; even if it means working seven days a week.  I still am waiting for someone to hire me.  Problem is, I’m overqualified for the minimum wage jobs, even though I am willing to work weekends.

I have managed to get enough donations for another round of chemo.  However, I now have two weeks to raise enough money for the next round.  My pride is temporarily on a shelf and I have to post a link to my fundraiser.

If you are able to donate, even a $1.00, I would appreciate it.  If you are able to share either via blog or on your FaceBook page, that’s appreciated.  I plan on removing the fundraiser if I am hired or if some non-profit is available to help.

I apologize for having to post the link; but if I don’t raise the $300, in the next two weeks, my chemo treatment stops.  Please take a moment to read the fundraiser and if you don’t mind, share it where you can.

THANK YOU!

Twiggfest

Published June 17, 2015 by lynn k scott

I thought, I have this blog, why not put it to some good use?

A new friend of mine, thanks Facebook, is having a fundraiser for his son who was a tattoo artist.  All I saw was “tattoo” and became interested.

It’s being held at the Theatre DeVille in Vacaville, CA.  If you’re local, I hope you would attend.

Simply go to the DeVille’s page and select “Tickets”.  Scroll until you find the event for June 27, 2015: Twiggfest.  You can purchase tickets for $10.00 in advance or $12.00 at the door.

It’s a family event and kids under 11 years old are FREE to get in.  If you know anyone who is local to the Bay Area, feel free to share this event with them.

Twiggfest

Upped the Ante

Published March 11, 2015 by lynn k scott

I was just informed by my tattoo artist, that the owner of the tattoo shop will match the $75 tattoo gift certificate I am buying as a fundraiser prize in my Relay For Life Raffle.

The winner now will receive $150.00 Tattoo Gift Certificate!!!

He then tells me he just sold $40 in tickets.  He’s sold $60 and I’ve sold $25 in tickets.  We still have 96 days to get those numbers up.  It really put a ray of sunshine in my day.

I walk the Relay at night, representing my team on the track, and watch the luminaries and think of my sister.  It’s my time of reflection; my time to remember her.

Just a note:   I know I’ve been posting quite a bit about my sister lately.  Whenever the 13th of each month rolls around, I my mind tends to wander to her.  In two days, it’s her 21-month angel-versary.  Her three year passing will be 8 days before the Relay.

A tattoo fundraiser

Published February 28, 2015 by lynn k scott

In my attempts to raise money for the Relay for Life that I am participating in this June, I asked a friend for some help.  The friend happens to be my local tattoo artist.  Together, we are raffling off a $75 gift certificate to the tattoo shop he works for and all the proceeds from the raffle sales will be donated for Relay for Life.

The tattoo artist who I am working with, actually did the memorial tattoo for my sister; the “All Will Get Better Bear”.

Bear

I love the idea and it seems to be going well.  We’ve had several people express interest and we have about 4 months of sales to collect.  My actually fundraising goal is $100.00.  I’m already half-way there, before starting this little venture.  I am hoping to sell enough tickets to reach $500.00.  I know it’s a considerable amount, but it would mean so much to me to be able to turn in that amount in donations.

I do have a fundraising page, which people can also donate directly to.  It makes no difference to me as it all goes to the American Cancer Society.  If you have spare change or would like to donate, check out http://www.relayforlife.org,  Every bit helps to end the disease, far too many of us are familiar with:  Cancer.

anotheronewiththecancer

Yes I am the Cancer Curmudgeon

Renew or redo

Home refurbish projects. Decorating, Design,AndGeneral Life Activities

cancer killing recipe

Just another WordPress.com site

Reclaiming HOPE

Learning to Live Well With Fibromyalgia

Wish to Dish

Celebrating food and all the joy that comes from creating and eating it.

Skipping Stones

Musings of a Mindful Disciple

Fearless

Diagnosis of a Chronic Disease Turned My World Upside Down

XP NUGGETS

Your daily source of positivity, motivation and inspiration: Available for you in a charming consumable nugget!

Fact Based Truth

Truth based on facts

The Recipe Hunter

Cook and Enjoy