help

All posts tagged help

Cancer Journey: Part 3

Published November 20, 2017 by lynn k scott

The second cycle, of six, started today.  One cycle down?  Not really…and here’s why…

The doctor’s office never discussed the actual dosage that would be mailed to me.  Seeing as these are chemo pills, you can only get them from a specialty pharmacy, via couriered delivery.  The last pharmacy only sent one of two bottles; and the lower dosage of the two.

Then, I find out, my doctor’s office failed to verify which specialty pharmacy the insurance used.  This makes a difference because using the incorrect pharmacy could make the patient fully responsible for paying for otherwise covered medication.  Finally, the correct specialty pharmacy was able to send all the correct medication.

Moving on…I get my blood draw and then see the doctor the next day (like I’m supposed to).  The nurse walks up to me with someone else.  The first person continues on and I see someone standing near me, but not saying anything.  I am playing a game on my phone, passing the time until I am called.  Several minutes pass and she said, “whenever you are ready”.  Wow!  This office really has communication issues.  That being said, my patience for dealing with them was ‘running on fumes’.

I had convinced myself to just get through the appointment.  I could do it!

The office and its occupants had other ideas.  The nurse directed me into a room, never took vitals, told me to take a seat and the doctor came in.  They wanted to “talk”.  The conversation that took place was an already decided upon course of action under the guise of a mutually beneficial conversation.  You know, like when you’re boyfriend or girlfriend says they want to talk and then tells you it might be best if you both saw other people.  Wait!  Did you get the license plate of the bus that just ran over me?  Starting to get the picture of how this office operates?

Basically, I was supposed to sign a document regarding my treatment and they were going to continue letting me receive treatment.  Hmmm…..I already pay insurance premiums for that “right”.  I signed their document and added, “signed under duress”. This didn’t sit well with them.  My stating I was forced to sign their document, which is a prime example of duress, gave them just another reason to say they weren’t going to treat me.

I knew vitals are required after every cycle.  They made no attempt to take them.  They knew I had my next dose of medication.  They knew I mentioned working on getting into a another practice instead of dealing with them.  I don’t trust doctors to begin with and this office was a cancer to my treatment.  Yea….it was that detrimental.

Am I a difficult patient?  Yup!  Do I deserve to have the doctors and their staff treat me with professionalism?  Yup!  Do I deserve to receive clear communication so I can give informed consent for my treatment.  ABSOLUTELY!!!!

However, there is no law from preventing medical doctors from withholding treatment from a patient; even with a potential life-threatening disease.  They don’t need permission, a hearing to remove the patient, or even assist in transferring them to another provider.

What if there isn’t another provider in the area?  Oh well, that’s the patient’s issue; not theirs.  When a practice discharges a patient, as they just had, they won’t take your calls and tell you to go to the Emergency Room if any issues arise.

After all of that, perhaps it was a blessing.  Don’t get me wrong.  I uttered several choice words, shed a few tears, said some prayers and moved on.  I’m getting set-up with a new  provider, within a new network.  I’ve had some friends (online and at church) offer support.

I’ve already got an appointment with a new primary physician, so I can get an emergency oncology referral.  Hoping she can order the necessary blood work, get the next dose of chemo ordered and I can follow-up with my new oncologist.

The situation is less than ideal.  I was on the fence about switching to another carrier/provider.  Perhaps being kicked out of a less-than-healthy medical practice was what was needed.  The group I am switching to has a very good reputation for their oncology department.  Who knows….maybe they will even offer some cancer support groups that weren’t available with my other provider.

Treatment has its ups and downs.  This past week has been such an emotional roller coaster.  I’m looking forward to moving on and getting better.

 

Advertisements

Could I ask a favor?

Published March 23, 2016 by lynn k scott

I typically don’t ask for favors, but I am now.

I have a talented friend, Tom, whom I met because of my sister.  He is a veteran and has entered a contest.  I would like to see his drawing get the most “likes”.  If you have Facebook, and it’s not too much trouble, could you please click on the link, “like” the drawing and feel free to say a few words in a comment if the moment moves you to do so.

Then, if you wouldn’t mind either sharing this blog or the link on your own Facebook wall, it would be a double dose of kindness.

So here’s the link, Jessie’s Warriors,

Thank you so much!

Locked Out

Published January 26, 2016 by lynn k scott

Nothing tops off a challenging day like trying to leave work and the key fob is dead. I couldn’t get into my car. Crap!  I had to call my husband because he showed me once, months ago, how to bypass the key fob.  Oh right…I should have remembered.  Damn, there goes the alarm.  A very loud, attention-getting alarm.

One of the dispatchers came over to help. Then a driver came to lend a hand.  The dispatcher suggests putting the key, which is in the fob for emergencies, in the door.  I know I’m kinda car stupid, but that won’t work.  This car had doors that looked shaved, so there is no key or code entry on them.

We finally found the secret-squirrel access.  My husband sucks at giving step-by step directions.  Saying, “now look on the top” can mean so many part in the trunk.  We didn’t look where he originally tried to explain where the latch was.  Alarm resounds. Woo hoo that’s twice. So obnoxious is my alarm.

Dispatcher opens fob, wipes something off and I can use it again. Need to replace FOB battery ASAP.

Want an anti-theft car?  Caddies are the way to go apparently. It even gives you a message when you finally start it…

wp-1453830337395.jpg

*Whistles innocently*

Published January 18, 2016 by lynn k scott

REBLOG!

Originally posted on It’s Good To Be Crazy Sometimes.  She’s in a contest, where you can vote daily.  Please take a moment, click the link and cast you’re vote.

Random Act of Kindness never hurt anyone.  Won’t you help a fellow blogger out?

Its good to be crazy Sometimes

I am just leaving this here, you know just incase 😉

http://blogawardsuk.co.uk/ukba2016/my-entry/itsgoodtobecrazy

View original post

Mom on the Bus – By Amanda Witow

Published January 18, 2016 by lynn k scott

Originally posted on Kindnessblog.com.  I’ve been there and learning to accept help from strangers is humbling, to say the least.  A little kindness goes a long way.

Comments are disabled here.  Please visit the original post to leave a comment.  Thank you.

Kindness Blog

This is something I witnessed years ago, but I like to remember it whenever I feel like people are too judgmental or what not.

So I was taking the bus home from university and it passes right by the social services building where I live. This woman with a tiny baby in one of those carry seats gets on. She doesn’t look great. Thin. Possibly hasn’t showered or changed her clothes recently. And she’s alternating between angry and upset.

 An older woman asked if she was okay and the woman shared how she had left her home town to come to the city to get help because her ex was abusive and a drug abuser. She’d gone to social services to try and get help because she had nothing and no one, and had just run out of formula for her baby. (Hence the upset) But whomever she spoke with…

View original post 233 more words

Humble

Published December 22, 2015 by lynn k scott

humble

Many of you know I am a Blue Star Mom.  If you are unfamiliar with what that means, it means I have a child serving (or has served) in the military. Blue Star Mothers is a national organization where local chapters meet to support each other, support our troops, their families and veterans.

I would say we’re most known for sending care packages.  However, there’s a side many people don’t see.  Blue Star Moms also address immediate issues that arise.

I had the honor of helping a military family, along with other Blue Star Moms and our community.  This family had a tragedy involving their young child.  We started a fundraiser in order to help raise airfare for the family.

I sent out a bunch of emails and shared Facebook posts and answered texts and kept in contact with our Blue Star board members.  Last night, I received a call.  A non-profit stepped up to donate the airfare money.  I was on the verge of tears.  We were going to be able to remove one stressor from this family who lost so much.

I was humbled today when I was presented with the check, was able to personally thank the man and his son for their donation and make another community contact.

Something as simple as airfare reminds me what I have to be thankful for. That by volunteering some of my free time, I can make a difference. Together with other Blue Star Moms, and our community, we are making a big difference.  We all have the ability to help someone:  lend an ear, give a hug, offer a smile, pay for someone’s coffee, volunteer, collect canned goods, etc.

In 2016, whatever is within your capabilities, I urge you to make a difference on some level.

Tips from Human Resources

Published November 18, 2015 by lynn k scott

I did it. The worst part of Open Enrollment is behind me. We’re only 2.5 weeks past when we should have submitted the forms for our 12/1 effective date.

Here are few tips I would tell ALL employees:

1) TURN IN YOUR FORMS ON TIME!!!
2) Open the packet when you receive it – even if you think you’re keeping everything the same!
3) Please don’t say, “I was busy”, when HR calls to find out where your forms are.
4) I know it’s confusing, but if there are 3 forms, put your address on them all! It’s ok to if HR has to complete 1 or 2 addresses, but 100+ is time-consuming.
5) When changing carriers, everyone must be submitted together. When you are late, you hold up everyone! No one gets insurance on time; including your boss!
6) ASK FOR HELP when you are confused or don’t understand the forms. I smashed my crystal ball and can’t predict the future anymore. You have to be a tad proactive.
7) SIGN THE FORMS!!!! With the changing of the laws, signatures are required. Yes, yes, you’re waiving coverage. Read the first three words again; SIGN THE FORMS!!!
8) When your HR person/staff has a glazed over look in their eye(s), make sure they are adequately supplied with coffee (and not from the Evil Empire aka Starbux)!

Reclaiming HOPE

Learning to Live Well With Fibromyalgia

Wish to Dish

Celebrating food and all the joy that comes from creating and eating it.

Skipping Stones

Musings of a Mindful Disciple

Fearless

Diagnosis of a Chronic Disease Turned My World Upside Down

XP NUGGETS

Your daily source of positivity, motivation and inspiration: Available for you in a charming consumable nugget!

Fact Based Truth

Truth based on facts

The Recipe Hunter

Cook and Enjoy

The Purple Almond

Where food is medicine.

Wedbites

"The Most Important Part of the Most Important Day of Your Life"

Mommy Usage

Perfectly Imperfect. Always Working Toward Better.

But I Smile Anyway...

Musings and memories, words and wisdom... of a working family woman