journey

All posts tagged journey

Cancer Journey: Part 10

Published March 16, 2018 by lynn k scott

It’s been a bit since my last update.  Life’s been challenging.  I thought I had a handle on things and I really don’t.  I should resign myself to Murphy’s Law and that my house is its headquarters.

Overall, exhaustion has been my new BFF.  Every weekend, I am taking extra naps just to stay functional.  I had another drawn out insurance/specialty pharmacy/doctor’s office issue.  Someone, which no one will own up to, put a notation for pre-authorization on an existing prescription (with one refill left).  This meant, I had to wait for all the different parties to do their job.  After much yelling, crying, sarcasm and general disdain, the issue has finally been resolved.  I had to constant follow-ups for anyone to do their job.  We’re not talking aspirin here, folks.  It’s chemo-medication that costs a small fortune.  You would think those in the medical field would have some compassion and a sense of urgency.  Please don’t hold your breath on that; you’ll end up dead waiting for that to happen.

I have come to the conclusion that once I receive my meds, I will be asking for a referral to a new oncologist.  It’s clear this current office isn’t working out.  I’m sure everyone there will have a small celebration to see me leave.   If you advocate for yourself, it seems you are not the correct type of patient for many of today’s doctors.

It’s sad there are more doctors who care less about working with informed patients, who are in charge in making decisions about their care.  They shouldn’t be made to feel bad about their decisions.  Have snide comments thrown at them, such as “well, you chose not to do IV chemo”.  You’re right, I chose to live my life, not be dependent on everyone, continue working, supporting my family and raising my daughter.  It’s funny, they know how expensive medication and treatment costs, but they chastise you for not giving up your job, going on disability (which doesn’t support much) and losing quality of life.  That’s what going on IV chemo would have done for me.

I working on simplifying areas of my life.  It’s definitely a work in progress.  I know the value of time, family and friends.  Right now, I’m in limbo as to if treatment is working, if I will need more, if I will find out it’s spread.  There are lots of things one can think about while being in such a limbo.  I try to focus on today and accomplish what I can.  Making memories is a top priority, should something change; not for the better.

Either way, ups and downs continue.  It’s a daily battle that I still plan on winning.  I appreciate all who have said prayers, made donations for my care, or can relate to this ongoing struggle.

 

My Chemo Fundraiser

Advertisements

Cancer Journey – Part 4

Published December 1, 2017 by lynn k scott

This is the second week of the second chemo cycle.  I would say it was almost uneventful; well, up until last night.

I realized I had way too much medication left in one of the bottles.  I realized I hadn’t been taking enough.  Part of that is my error; part is on the doctor and pharmacy for how it was written.  It was written to where the dosage could be take 4 pills daily.  The reality is I was supposed to take 4 pills in the morning and 4 in the evening.  Add in, this new idea of putting all the dosages on the same label, only adds to the confusion.

I will get three and a half days of the correct dosage.  In addition to the poor writing of the prescription, it the oncologist is to blame for refusing to cover the actual dosage with me.  It really goes back to the on-going poor communication.

As I was discharged for the Cancer Center’s care, for lack of communication, I was going on my own these two weeks, with no medical supervision.  It’s proven not to be an issue where the medicine is concerned.

Currently, I’m still not having horrible side effects, which would require a medical professional’s intervention.  Thank heaven for small miracles.  Without having a doctor to consult, my only option would have been to go to the local emergency room.

It’s a sad day when such a serious medical issue is handled so carelessly.  Today, I’m officially registered with a new carrier and provider.  I meet my new Primary doctor next week.  I hope she can get the emergency oncology referral taken care of and I hope I can get my medication next week as well.

I put this as a status (on Facebook) yesterday.  I wish more doctors understood this concept.

If more doctors would realize there are patients in tune with their health and we use them as guidance and not God, healthcare could actually be about care and not maintaining someone.

Continued prayers would be appreciated as this battle is so up-in-the-air.

Cancer Journey: Part 2

Published November 6, 2017 by lynn k scott

I’ve been on oral chemotherapy for a week now.  I have been lucky not to experience many side effects.  The worst, so far, has been nausea and fatigue.  Those who know me, know I am always on the go or doing something.  Friends ask me if I know what the word relax means.

My anger has subsided a bit.  I am still less than pleased with my oncology team.  However, I am doing my best to see the positives in all this.  Positives with cancer?  Seriously?  Yup!

I truly believe God has a plan for me; for all of us, really.  I have known so much suffering, loss and tragedy.  What’s a stage 3 cancer diagnosis added to all that, right?

I was speaking to our pastor’s wife yesterday and shared how I recently thought of a positive to having cancer:  it’s brought my oldest and I closer.  One could say we’ve had a tumultuous relationship.  We were having a rough patch prior to my diagnosis.  We had only recently started speaking again.

Once I told him about the diagnosis, our relationship improved.  It reaffirmed how precious life is and how it’s not promised to anyone.  So, if cancer brought us closer together, than I am grateful.

Another positive is, as a friend pointed out when she heard the news, this disease would bring me closer to God.  She was right.  This struggle is not mine alone.  He is with me through this.  It’s my job to trust in Him and give Him control of the situation.  He has guided me to a church with very supportive and caring people.  He will stay beside me on this journey.

I am also learning to rest and pay attention to my health.  Currently, I have energy for about half a day.  I am still working a full-time job, homeschooling my daughter every evening and running a household.  Is my house as clean as I want it?  Heaven’s no!  Truth be told, it’s driving me nuts to have clutter and not having certain areas spotless.  Will we survive?  Yup!

My daughter and husband have taken on a few of “mom’s chores”.  They are aware I just can’t do it all or that it might be postponed if i need to take care of it.  I am taking time to spend a extra hour or two in bed on the weekends.  I am going to sleep hours before the clock approaches midnight.

Today was the first day I had to wear a mask at work, as my immune system becomes more compromised.  I was NOT happy having to do this.  Yet, a friend suggested having my artist daughter (who’s 11), draw happy faces and butterflies on my masks for me.  I’m going to give her a few to try out.  She’ll get to be expressive, I get to count this as art for homeschool and I should have some “designer” masks to make this journey a bit more bearable.

So as much as I hashtag, #cancersucks, there are silver linings to be seen.  You just need to know where to look.

Stop Competing

Published March 2, 2017 by lynn k scott

Stop competing in sports?  No.  Nothing like that.  I read something the other day and of course, it got my mental wheels spinning.  The more I thought about it, the more I saw it in myself as well as others I know.

When I say ‘stop competing’, I’m referring to with other people, with your past, with whatever is making you second-guess yourself.

We are all individuals.  We all have our own path to walk, accomplishments, failures and mistakes to make.  It’s who we are.  It’s what makes us individuals.

As a mom, I’ve thought, I wish I had the time to stay at home with my kids.  I wish I was more understanding.  I fly off the handle too much.  It’s not fair I have to work and others don’t.  Why isn’t my house as clean as my friend’s house?  Heck, she has more kids at home.  Why can’t I be Pinterest crafty?  I wish I dressed better.  I wish I could afford to get my hair done more often.

Why am I comparing myself to other people?  I work hard to try and stay humble; to count my blessings; to be content with what I have; to strive to improve where needed.

I need to remind myself it’s not a competition.  My path is meant for me.  What I do and don’t accomplish is my responsibility.  I am enough and if there are changes to be made, the ball is in my court and I either find a way to make it happen or I accept the reality if it doesn’t.

If this sounds familiar, and I’m sure it does to someone, then remember you are meant to be who you are and I am meant to be me.  It’s not a competition; but a journey to be taken.

200 Followers!

Published January 17, 2016 by lynn k scott

The other day I received a WP notification.  I had reached 200 followers!  I was surprised and then happy.  Ok, so the actual number is 203 now, but there are over 200 people who actually read what I write.

I admit, I’m still someone a blogging newbie.  It’s only been a year and I haven’t always been that consistent.  That being said, I’ve renewed my effort into seeing how far I can take my humble little pink blog.

Thank you for coming along on this journey; wherever you may have joined it.

To Co-Op or Not to Co-Op?

Published July 22, 2015 by lynn k scott

August will begin our third full year of homeschooling.  Hello fourth grade!  While I admit, I was very overwhelmed when we began our homeschooling journey, I am blessed that we were guided down this educational journey.

A friend of mine has decided to homeschool her daughter.  She let me know of a local homeschool co-op and suggested I join.  I was wary.  I had done my research into local groups.  To be honest, most aren’t helpful; if I can even locate them.  The reason being, I am also a working mom and we do new lessons in the evening and weekends with homework during the day.

I was assured this group was different.  There wasn’t a membership fee.  They got together weekly, late afternoons and early evening.  Hmmmm?  I might be able to utilize that time-frame.  Ok, here goes a new adventure.  I joined the group.  Granted, I’ve only “met” them on Facebook; so far.  This Friday, we will meet for our first group get-together.

I’ve been asking questions of the group.  We are registered as a private school.  Anyone else?  Yes, yes there are others like us! They have also checked out local charter schools, as I did and they knew which ones I was referring to.  Ok, that’s nicer than just my other online groups.  Having them based locally helps a bit more; there’s a connection.

I am not sure I would have made it this far without online, homeschooling support.  I am very interested in seeing how local, in-person support is going to help us.  I think it will be a good experience for my daughter to make friends with other kids who learn similar to her educational structure.  Perhaps she will gain a different perspective?  Maybe we can find other homeschoolers who are also learning ASL (American Sign Language) and have practice buddies?

Regardless of how this turns out, it’s another experience we are utilizing in this educational pursuit.  I, for one, am looking forward to the upcoming interactions.  I am impressed with the group, and it’s only been a week.  I look forward to thinking, “why didn’t I do this sooner?”

Question time:  If you homeschool, are you part of co-op?  Why or why not?

QOTD: Topic – Lessons

Published July 11, 2015 by lynn k scott

“We’re put here on Earth to learn our own lessons. No one can tell you what your lessons are; it is part of your personal journey to discover them. On these journeys we may be given a lot, or just a little bit, of the things we must grapple with, but never more than we can handle.” (Elisabeth Kubler-Ross)

capturing the charmed life

enjoying the sweet life as I home educate, homestead and settle into a smalltown simple life

Fabulous Realms

Worlds of Fantasy, Folklore, Myth and Legend

Gem Of The Gym

Helping You Live Your Healthiest Life, One Day At A Time

Broken Unashamed

Saved by grace. Sharing my life, heart, and soul through these words...

Sprittibee

Bloggy-Sweet Honey Goodness

Best Dog Training Tips & Tricks

Dog Training Guidance

Kristen's Healthy Living Blog

Exploring ways to live a healthier life

Chris Beat Cancer

A resource for healing cancer with nutrition and natural therapies by chemo-free survivor Chris Wark

The Godly Chic Diaries

GRACE FOR PURPOSE

A Jeanne in the Kitchen

I have created this site to help people have fun in the kitchen. Make changes, use what you have and what you like, and be creative. Cooking is supposed to be fun. Enjoy!

Simple Gourmet Cooking

Great Food Made Easy

Elves Choice

Holiday Bargains & Recipes

Kitchen Insights

Ideas And Recipes For Your Kitchen

Cooking Without Limits

Food Photography & Recipes

Mom Life With Chiari

sharing all things home, kids, faith + life

Simply Splendid Food

Food that people love and super healthy at the same time

grieftolife.wordpress.com/

Walking through the journey of pain and loss, one day at a time, with purpose. Holding on to the hope of the joy that lies ahead.

Smart Diet

Choose Weight Loss. Choose Health.

Becoming His Tapestry

Because I am in the process of becoming, of allowing my Master to weave the various threads of my life into His Masterpiece. Proverbs 31:30