All posts tagged medication

Cancer Journey: Part 8

Published January 19, 2018 by lynn k scott

I went to the oncologist yesterday and was told I can see her every six weeks verses three weeks.  I guess that’s progress.

A small victory is being overshadowed by a side-effect of being on oral chemotherapy.  While I have less issues than someone going through IV chemo, there are still side effects to endure.  No matter which chemo you are on, “chemo-brain” will invade your daily functioning; just like the cancer itself.

I recently said that I felt like a defective typewriter.  Now, if you’ve seen the movie, “Grease”, you know that line and who said it.  While I know I’m not pregnant (what it originally referred to), my mind does not work like it used to.  I feel like I’ve been crossed with someone who’s had a stroke and someone who has dementia.

What I mean by that is, I forget a lot of stuff now.  I originally was using the calendar and note features on my phone, however, it was a lot of data to keep typing in.  When you have your fingers drying out and splitting open (another side effect), a simple act like entering text becomes challenging on an entirely other level.

I have purchased a planner that I can write everything into.  It’s easier to make the entries (not as painful).  In addition to tracking my chemo treatments, the never-ending doctor appointments and blood draws, it reminds me of simple things I would never enter; my daughter’s sleepovers, church, bible study, pay a bill, a reminder to speak to someone, etc.

Aside from being forgetful, what I am thinking, doesn’t reach my mouth to be said the way I thought it or I can’t figure out what I need to do to make it happen.  Now, I’m guilty of saying things I shouldn’t. It’s hard to explain, as an example escapes me at the moment.  I’ll make several attempts to do or say something.  Sometimes, even writing something down, I use the wrong word.  I know it’s wrong and I have to rewrite it; sometimes multiple attempts to get it right.

I’m a very organized, thought-out, planning, A-type personality person.  While this chemo-brain can be amusing, to family and friends (esp. in the beginning), it’s extremely frustrating.  It’s bad enough dealing with cancer, but now your brain isn’t responding the way it used to.  It’s hard to be normal, when your mind won’t communicate with your body.  Knowing, you can’t fix it.  Knowing it’s going to stay with you while you’re being treated.  Knowing it’s going to get worse.  Praying it goes away when the medication consumption does.

I know change is a part of life.  I know bad things happen to good people.  I know this was my choice to consume this poison because Big Pharma is more interested in profits than a cure.  I know all of this and still I question if this is my new normal.  I’m not ready to accept that it is.  In fact, I pray it isn’t.

“Chemo-brain” makes us work twice as hard to do what we used to with ease.  It’s just one more way cancer robs us of independence and our former self.

Please take a moment to view/donate/share my fundraising link.

Chemo Medication Fundraiser 



Cancer Journey – Part 4

Published December 1, 2017 by lynn k scott

This is the second week of the second chemo cycle.  I would say it was almost uneventful; well, up until last night.

I realized I had way too much medication left in one of the bottles.  I realized I hadn’t been taking enough.  Part of that is my error; part is on the doctor and pharmacy for how it was written.  It was written to where the dosage could be take 4 pills daily.  The reality is I was supposed to take 4 pills in the morning and 4 in the evening.  Add in, this new idea of putting all the dosages on the same label, only adds to the confusion.

I will get three and a half days of the correct dosage.  In addition to the poor writing of the prescription, it the oncologist is to blame for refusing to cover the actual dosage with me.  It really goes back to the on-going poor communication.

As I was discharged for the Cancer Center’s care, for lack of communication, I was going on my own these two weeks, with no medical supervision.  It’s proven not to be an issue where the medicine is concerned.

Currently, I’m still not having horrible side effects, which would require a medical professional’s intervention.  Thank heaven for small miracles.  Without having a doctor to consult, my only option would have been to go to the local emergency room.

It’s a sad day when such a serious medical issue is handled so carelessly.  Today, I’m officially registered with a new carrier and provider.  I meet my new Primary doctor next week.  I hope she can get the emergency oncology referral taken care of and I hope I can get my medication next week as well.

I put this as a status (on Facebook) yesterday.  I wish more doctors understood this concept.

If more doctors would realize there are patients in tune with their health and we use them as guidance and not God, healthcare could actually be about care and not maintaining someone.

Continued prayers would be appreciated as this battle is so up-in-the-air.

Walgreen’s Policy

Published April 15, 2016 by lynn k scott

Walgreen’s is a local drug store.  Personally, I’ve been to better, but that’s for another time.  Recently, I had my doctor send a prescription to the Walgreen’s pharmacy, which is less than a mile from my house.  I can honestly say, I won’t be making that mistake again.

I gave in and went to my doctor last week.  If you follow my blog, you know how I am not a fan of visiting those in the medical community.  However, the pain in my stomach, the vomiting, the wanting to die persuaded me to make an appointment.

It’s not bad enough I deal with Celiac’s Disease on a daily basis.  I had an idea what was wrong with me, upon entering the doctor’s office for this new issue that had been plaguing my stomach.  Sure enough, the doctor confirmed it….an ulcer.

He started me on some medicine to let my stomach heal.  My doctor’s office is about 30 minutes from my home; close to work though.  You would think my prescription would be ready by the time I reached the pharmacy.  Silly you…of course it wasn’t!

Naturally, why fill a prescription when you can wait for the patient to come in and ask for it and then begin filling it.  Who cares about wasting other people’s time, right?

The prescription finally comes up and again, silly me, I look to the board that say it’s ready.  My phone is ringing…who could it be?  Why, Walgreens, of course!  Their automated system was telling me my medicine is now ready.  Funny, the waiting room board was still blank.  Obviously, a good investment for the store.

When I arrived, there wasn’t a line.  Naturally, when I need to pay for my medicine, there is.  I try the kiosk to pick up my medicine.  That would be too easy.  It let me get all the way to where I pay for it and stopped me.  I had to speak to someone.  Damn!  Now, back in line I go.

After waiting another 15 minutes, the tech couldn’t find my prescription.  It was sitting within an arms reach of her register (but out of my vision).  I pay for it, I sign for it, it’s now mine.  Uh uh uh!  New policy.  I must be offered a consultation.  Really?  I thought I was in charge of whether or not I spoke to the pharmacist.

The tech takes off to go get the pharmacist.  I am very vocal at this point that I do not need or want a consultation.  I take my bag from the pharmacist and leave.

After speaking with the store manager, a lowly tech, isn’t qualified to hear the words, “I don’t want a consult”.  The one and only pharmacist, who now is constantly interrupted to make sure this consult option is offered, must stop filling prescriptions to deal with customers.

I let the manager know, there’s one slight problem with their corporate policy; it violates my rights to my medication.  Before you go defending this slower than molasses pharmacy, hear me out.

If their policy is to make sure everyone receives or waives their consult, it needs to be done PRIOR to the customer signing and paying for their medication.  Their “in-house” policy does not trump my right to my medication, that is now mine once it’s been paid and signed for.  They failed to realize this and I made it very clear they have lost my business.  I’m sorry, in this case, the customer was right.  They wasted enough of my time and I wasn’t standing quietly by while they imposed their policy on me, which was declined several times.

CVS is a much better pharmacy and drug store.  Walgreens may be good, in some city, but the two locations, in two cities that I have lived, they are the most inefficient locations of the company.  Just know your rights and make sure you pay after declining.

Luke 23:43 Jesus answered him, “Truly I tell you, today you will be with me in paradise.”

Photo by Matthew C Seufer - Oak Grove Baptist Church- Elgin,South Carolina USA June 10,2013 (Page 14 in the Inspirational book "Windows From Heaven")


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