Head over to Dream Big Dream Often. Lots of great reading material there!
This is not the easiest post and it doesn’t have anything to do with the status of my diagnosis.
The last couple weeks have been tough. I had to change my insurance plan, at work, and elected the “gold” versus the “silver” plan, in order to get rid of the annual deductible and bring down the usage fees when I see the doctor or get labs. It also raised my weekly contribution costs, but it had to be done.
Unfortunately, with this plan change, came with a carrier change. I joined the Sutter Health network and am sad to report they choose to charge patients a 20% copay for chemo medication, where other plans cover it 100% or charge a max of $50/prescription. Hopefully, one day they realize how punitive this is and begin to cover oral chemotherapy pills as effectively as they do IV chemotherapy.
I left a plan where I was receiving negligent care and now I have a decent oncologist, but can’t afford an additional $300; every three weeks. That includes the cost of the doctor visit, blood work and the expensive medication copays. If I give up the ability to work (which eventually puts my job in jeopardy), submit to another surgery for a port, start IV medications, lose my independence, risk permanent side effects and not provide for my family, then the medication would be covered 100%. Riddle me this…oral chemo is cheaper than IV treatment, but the insurance refuses to cover it 100. Why? Never mind; I digress.
After numerous breakdowns, I conceded I had to ask for help. I have had to resort to something I really hate doing. I know fundraisers have helped many people and I have donated to those in need. I was brought up that you work hard and support yourself.
I have followed the proper channels to ask for medication assistance. It appears I was diagnosed at the wrong time of the year. Nonprofit sources run out of money to help with prescriptions by the end of the year; that’s if they even acknowledge your disease. Again, not all cancers are pink, but that’s where the funding is.
I have applied for part-time jobs. I already work a full-time job, but need something to pay for my medication; even if it means working seven days a week. I still am waiting for someone to hire me. Problem is, I’m overqualified for the minimum wage jobs, even though I am willing to work weekends.
I have managed to get enough donations for another round of chemo. However, I now have two weeks to raise enough money for the next round. My pride is temporarily on a shelf and I have to post a link to my fundraiser.
If you are able to donate, even a $1.00, I would appreciate it. If you are able to share either via blog or on your FaceBook page, that’s appreciated. I plan on removing the fundraiser if I am hired or if some non-profit is available to help.
I apologize for having to post the link; but if I don’t raise the $300, in the next two weeks, my chemo treatment stops. Please take a moment to read the fundraiser and if you don’t mind, share it where you can.
Love sharing blog posts. You get to read, and maybe even follow, some new blogs!
As most of my followers know I am big into helping other bloggers gain more exposure. My goal has been to grow a community of like-minded people and I am part way to my goal. I am bringing back the open call to leave a link and I’ll share it for you!!
The basic rules are simple: leave me a link to your page. I’m not sure it gets much simpler. You can leave as many links as you want and I’ll cycle this post from day-to-day so more people can jump on board. The link post I’ll create will publish on Mondays, Fridays and Saturdays.
A great way to share you posts and meet other bloggers. Always fun to participate in “meet and greet”.
It’s the Meet and Greet weekend everyone!! Strap on your party shoes and join the fun!
Ok so here are the rules:
- Leave a link to your page or post in the comments of this post.
- Reblog this post. It helps you, it helps me, it helps everyone!
- Edit your reblog post and add tags.
Feel free to leave your link multiple times! It is okay to update your link for more exposure every day if you want. It is up to you!
- Share this post on social media. Many of my non-blogger friends love that I put the Meet n Greet on Facebook and Twitter because they find new blogs to follow.
See ya on Monday!!
If you have a Facebook account, you might be familiar with a semi-new feature called, “On this day”. It allows you to look back on your posts that you made that day, from years ago. Some days, the memories are ones I don’t care to remember. Others are one that I can’t believe I had forgotten or immediately bring a smile to my face.
Since 2012-2013, when I discovered I had Celiac’s Disease, during one of the hardest times in my life, losing my sister and mother within a year of each other, I started undergoing a body transformation.
Can I pinpoint exactly what has caused the weight-loss I experienced? No. There’s been a combination and I to say which one has done more is virtually impossible. Obviously, having to change my diet to a gluten-free one was a factor. Having a stress-level, that probably reach an unhealthy level was another. Then there were the days and weeks that I was accidentally “glutened” or just didn’t care and ate food that would hurt me. My body responded appropriately and emptied my system (rather violently at times) and/or caused great pain to remind me that I can’t do that. Eating healthier, giving up soda, becoming addicted, and competitive, on with my basic FitBit, drinking more water has all played a factor in my weight loss.
So what does this have to do with Facebook? On July 6, 2016, I had “memories” to look back on and there was one from 2013. I couldn’t believe looking at the picture how much I had changed. Ironically, that morning, I had my daughter take a full body pic of me (almost never do this). I had her do it because I liked the comfy outfit I was wearing and the jeans now another size smaller.
I decided to put the two pictures side by side. I was blown away. So much so, I shared it with my Facebook friends. Those who know me, know I don’t share many pictures of myself, esp. full body ones. Even my eldest child, who loves to give me grief and isn’t known for compliments, gave me credit for my dramatic change. I didn’t spend money I didn’t have on a gym, diet pills, or even increase my exercise level dramatically. I walked a bit more and watched what I was eating. Ok, I had to watch what I was eating because of the Celiacs, but it was still an opportunity to evaluate my food and beverage choices. I occasionally will have a soda from time to time or on a bad day, eat half a tub of ice cream, but I still am dropping the weight because I choose to make a conscious effort.
I never thought I would lose as much weight as I have; over 40 pounds. It’s staying off because it’s been gradual. Slow and steady wins the weight-loss race.
I typically don’t ask for favors, but I am now.
I have a talented friend, Tom, whom I met because of my sister. He is a veteran and has entered a contest. I would like to see his drawing get the most “likes”. If you have Facebook, and it’s not too much trouble, could you please click on the link, “like” the drawing and feel free to say a few words in a comment if the moment moves you to do so.
Then, if you wouldn’t mind either sharing this blog or the link on your own Facebook wall, it would be a double dose of kindness.
So here’s the link, Jessie’s Warriors,
Thank you so much!
Check this blog out…great way to cross-promote!
It’s that time again! This drives me crazy, I want to be consistent with my verbiage and the bi-weekly vs bi-monthly thing is annoying. So to be clear, in February I started hosting meet and greets every other weekend.
If you’ve attended one of my previous meet and greets you know that I’m all about the interaction.
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