Not a whole lot to report. I am experiencing issues of anemia again. The same symptoms when I was diagnosed (almost exactly a year ago).
I called the oncologist’s office to find out what’s going on with my CT scan. Well, it’s on hold because of their inadequate scan coordinator. The facility, that’s in my city, can do the scan, but refuses to administer lidocaine to numb my arm for the IV. I have collapsing and rolling veins. Most IVs take two or three attempts (not to mention hurting like hell on each attempt). They don’t do that on a “clinical level”.
Seems the scan coordinator is inept at calling the patient to update them or having someone else follow-up. It would seem, the scan coordinator isn’t able to search other hospitals to see if they might be able to accommodate a very reasonable request. Nah – let’s not do anything…we’re only talking cancer, right?
The receptionist was gracious enough to let me know that following up wasn’t in her job description. She agrees someone should have called but couldn’t answer who would do that. Let’s chalk that up to “no help”, shall we? Then she told me to feel free to call back to check on the status. I let her know I have been symptomatic. Gave her all the symptoms. Anyone with half a brain, working in a hematology office knows what anemia sounds like and should make sure the patient is called back. Yea…not this office.
I almost passed out yesterday. I was able to stay awake for 1.5 hours after work. I slept after work and was in bed at 9:00 and went to sleep for the evening. Their inept attitude is robbing me of my quality of life.
Am I demanding? Yes. I give them an opportunity to do their job and then I take off the “kid-gloves” and let them have it. I will not apologize for being my own advocate; esp. when patient advocacy and the online help feature have also failed me.
I submitted a referral request for a doctor, who’s an hour away. I asked for confirmation they received the fax and confirmation when it was processed. The fax was sent over five hours ago. Did the doctor’s office call: Nope! Now I have to follow-up with them; again.
There is no excuse I am receiving such horrendous treatment. If I end up in the emergency room, I will not be paying a bill that could have been prevented by the doctor’s office simply doing their job.
Part of the blog is to show how (cancer) patients are being treated while facing a life-threatening illness as well as documenting issues should a lawsuit be necessary.
Sutter Health Plus, based out of Sacramento, California, should be ashamed at its inability to provide healthcare based on the needs of the patients. I shouldn’t be forced to go to a subpar facility, even if they deem it ok.
Apparently, I have Schrodinger’s Cancer: I either have it or I don’t. Guess we’ll never know because my health isn’t a priority to anyone but myself.